Hi bbbb, I'm really sorry about the lupus! Hopefully, it goes into remission and your hair grows back. I could be mistaken, but I thought lupus kind of comes and goes - I hope it goes for a long stretch!

Meanwhile, have you tried protein, like in Curl Junkie Repair Me? Please post back and let us know if you find something that helps.
2/c and some 3A.
Protein sensitive but can use occasionally
Highly porous. Color over grey.
Best 1st day method: Super Soaker
Stylers: Mix Curls in a Bottle into everything for shine. Terrible pj
Sometimes try roller sets - classic glamor but I prefer my curls.
Every day is a gift