Hi bbbb, I'm really sorry about the lupus! Hopefully, it goes into remission and your hair grows back. I could be mistaken, but I thought lupus kind of comes and goes - I hope it goes for a long stretch!

Meanwhile, have you tried protein, like in Curl Junkie Repair Me? Please post back and let us know if you find something that helps.
2/c-3a Coarse hair med. density.
Protein sensitive but can use occasionally
Highly porous. Color over grey.
I love all the Curl Junkie products and use CJ CCCL as my main styler. Still hoping for 2nd day hair....
Every day is a gift