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Old 04-18-2008, 05:45 PM   #1
 
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Default Prednisone Anyone?

Has anybody noticed not only serious appetite increase and weight gain, but huge quantities of hair falling out if you're taking this stuff? It's awful stuff, but necessary for me to manage my eczema but I hate how I lose like 50 bags of hair when I'm taking it!

Anybody else experience this?
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No...going no-poo or CG does not work for me. It leaves me overconditioned and oily in a second no matter what I use, so that's not what's not working.
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Old 04-19-2008, 02:02 PM   #2
 
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WonderTwin!! I am so sorry to hear that you are having to take prednisone. I had to take it a few weeks ago, it made my blood sugar go up and down, it made me extremely hungry and above all, it made me have a rapid heart beat. I went out running and thought I was having a heart attack...worst week of my life.

Is there nothing else that you can do? Maybe give up dairy? (Seriously, I had eczema until I gave up dairy... the allergist told me that my kids would have it until they gave it up too.)
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Old 04-19-2008, 02:13 PM   #3
 
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Nope...nothing. We did allergy tests...nothing on whatever they tested me for, I think chemicals. No dairy in my life (not even soy). Season changes make it worse, so right now I'm just dealing. Yup, blood sugars rage up and down and ravenous hunger. I go from eating like 2 times a day to eating all day long...huge quantities. Bags of chips, huge french dip sandwiches...I even had to buy a bag of sunflower seeds (I know...sodium) to help keep the munchies down.

Don't know about the exercise, because...well, I haven't exercised in quite some time. But mood swings...whooey! I always make a disclaimer to coworkers and family when I'm on the juice because it's a guarantee that I will be hag-city.
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This area is under construction as my hair type changed and nothing works well for me. I shampoo, I condition and pretty much have done nothing but chuck my hair in a messy bun for the past oh...year? Yeah, I'm that lazy.

No...going no-poo or CG does not work for me. It leaves me overconditioned and oily in a second no matter what I use, so that's not what's not working.
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Old 04-19-2008, 02:38 PM   #4
 
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I am sorry. Have you given up sulfate/silicones on your entire body? Seriously, if sulfates dry our hair, they dry our skin too. I am thinking about trying it...I don't have eczema, but I have extremely dry skin.
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Old 04-19-2008, 02:49 PM   #5
 
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Hmmm...mostly, I think. I generally scrub my body with a body pouf, then just use soap on the pits and privates. Then I lotion up or spray oil on for moisture. I used to make my own lotion and am contemplating starting it again.

My one downfall...face primer. Can you say silicone city? But, my skin is amazing since I started using it. Otherwise, I avoid cones (I think). The only real place I have eczema is on my fingers/fingertips. I think it's because I deal with paper all day long. There was a theory the formaldehyde in the paper was causing the breakouts, but that was debunked. I just gotta hang out until the seasons are done changing.

But did you experience hair loss? I'm not talking normal hair loss...I'm talking handfuls of hair hairloss.
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This area is under construction as my hair type changed and nothing works well for me. I shampoo, I condition and pretty much have done nothing but chuck my hair in a messy bun for the past oh...year? Yeah, I'm that lazy.

No...going no-poo or CG does not work for me. It leaves me overconditioned and oily in a second no matter what I use, so that's not what's not working.
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Old 04-19-2008, 05:41 PM   #6
 
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On your fingertips...now, I know, for-a-fact that we are TWINS!! The tips of my fingers split and bleed (and the back of my knuckles), and my dermatologist prescribed Cerovel lotion and I put it on in the evening, let it dry for a few minutes, then put a thick cream over it...like aquaphor, then, I put on white cotton gloves and go to sleep. It really helps...

As for clumps of hair falling out, it could be that is the reason that I am experiencing the same thing right now, I would think it might take a week or two for it to show up. I noticed this morning that I felt like I might be bald due to the amount of hair on the drain.
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Old 04-19-2008, 10:05 PM   #7
 
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Quote:
Originally Posted by hopetocurl View Post
On your fingertips...now, I know, for-a-fact that we are TWINS!! The tips of my fingers split and bleed (and the back of my knuckles), and my dermatologist prescribed Cerovel lotion and I put it on in the evening, let it dry for a few minutes, then put a thick cream over it...like aquaphor, then, I put on white cotton gloves and go to sleep. It really helps...

As for clumps of hair falling out, it could be that is the reason that I am experiencing the same thing right now, I would think it might take a week or two for it to show up. I noticed this morning that I felt like I might be bald due to the amount of hair on the drain.
Yes, yes, yes! I get little funky "blisters" on the tips of my fingers, which then thickens, cracks and bleeds. I have topical creams to try and head off the cracking, but sometimes it just doesn't work. That's when the prednisone comes out. Luckily, I only take 2 pills for 2 days and it takes care of it. I do do the cotton gloves thing followed by either a heavy cream or vaseline, except I end up somehow taking them off halfway through the night!

And yes, it does take a while for the hair to begin falling out...usually a week for me, I think. It's a might scary to see all the hair coming out, huh? Always freaks me out a little. Then it starts to taper down to normal.
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This area is under construction as my hair type changed and nothing works well for me. I shampoo, I condition and pretty much have done nothing but chuck my hair in a messy bun for the past oh...year? Yeah, I'm that lazy.

No...going no-poo or CG does not work for me. It leaves me overconditioned and oily in a second no matter what I use, so that's not what's not working.
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Old 04-20-2008, 01:38 PM   #8
 
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I tend to lose a lot of hair a day anyway, but I have noticed MUCH more hair in the drain for the past week or so...YIKES!!!

Hmmm... there has got to be another way...
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We could learn a lot from crayons; some are sharp, some are pretty, some are dull, some have weird names and each is a different color. But they all have to learn how to live in the same box. ~Anonymous

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Old 04-20-2008, 05:01 PM   #9
 
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That's exactly what I was saying, but when the doctor started mentioning xray photo therapy 3-5 times per week...I ran screaming in the other direction. First of all...that much radiation, even if it is on just the tips of my fingers can't be good (I mean, even worse than the prednisone). Second...I don't have the time to devote to 3-5 doctor visits a week and $35/visit, plus whatever the insurance doesn't cover. That can't be a cheap treatment. And every time I went in there, it was like he had to review what was wrong and explain what was happening to my skin to me every time. Yeah, I got it after the first...second...third...fourth...etc. time.

I had already devoted way too much time and money to try and "fix" the problem and we kept on having the same results...prednisone "pulses" for 2 days would clear it up when the topical creams wouldn't. And it got to a point where I only had to use it like once every 6 weeks or so. Now, with the change in seasons, it's creeping back up to about once per week or once every 10 days. It'll slow down once the extreme changes in weather are over.

If I didn't have to see students all day and have to deal with them seeing my hands, I think I would just deal with the cracked fingertips. But then (according to the doc) it opens me up for some serious staph infections because I have so much contact with shared equipment and paper. What's a girl to do?
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This area is under construction as my hair type changed and nothing works well for me. I shampoo, I condition and pretty much have done nothing but chuck my hair in a messy bun for the past oh...year? Yeah, I'm that lazy.

No...going no-poo or CG does not work for me. It leaves me overconditioned and oily in a second no matter what I use, so that's not what's not working.
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Old 05-17-2008, 02:52 PM   #10
 
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i don't know about the hair issues, because i was getting chemotherapy while on prednisone, so it's not like i had any hair to fall out. BUT i have total sympathy for everything else. one day on prednisone, i ate 5 hotdogs in a row. this from a former vegetarian. oh, and the roid rage was a blast. power through it and you'll have hilarious stories to tell when it's over.
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Old 05-17-2008, 03:14 PM   #11
 
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Quote:
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i don't know about the hair issues, because i was getting chemotherapy while on prednisone, so it's not like i had any hair to fall out. BUT i have total sympathy for everything else. one day on prednisone, i ate 5 hotdogs in a row. this from a former vegetarian. oh, and the roid rage was a blast. power through it and you'll have hilarious stories to tell when it's over.
Yup, roid rage. Been there. I e-mailed my cousin because she was on it for like 2 years. She e-mailed me back, and this was her response:

"SunshineGrrl, I feel compelled to tell you that doing the roids will seriously mess with your package."

HAHAHAHA! I love that girl.

I was slightly scared that they were going to put me on it on a constant basis for some abdominal pain, but it turned out not to be colitis like the thought, so we're still going through the testing phase. I'm back on the juice for the next couple days because I had to leave it alone while they were doing the colon tests. Now my fingers are close to looking like hamburger. Ewww...just eww. I hate the change in the seasons. Kills my skin every time.
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This area is under construction as my hair type changed and nothing works well for me. I shampoo, I condition and pretty much have done nothing but chuck my hair in a messy bun for the past oh...year? Yeah, I'm that lazy.

No...going no-poo or CG does not work for me. It leaves me overconditioned and oily in a second no matter what I use, so that's not what's not working.
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Old 05-27-2008, 12:52 PM   #12
 
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I feel for you! My son has had eczema since about 4 months of age and the only thing I've found that clears it up is homeopathy. I don't know if that's an option for you or if you're open to it, but I took him to a classical homeopath who did a complete intake and exam and it made a world of difference. He was treating him with a sulfur homeopathic every 6 weeks or so.
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Old 05-27-2008, 02:49 PM   #13
 
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Quote:
Originally Posted by iwantcurls View Post
I feel for you! My son has had eczema since about 4 months of age and the only thing I've found that clears it up is homeopathy. I don't know if that's an option for you or if you're open to it, but I took him to a classical homeopath who did a complete intake and exam and it made a world of difference. He was treating him with a sulfur homeopathic every 6 weeks or so.
I would so be interested in this! I'm too much of a poor waif right now because I have other medical drama going on right now and it's cleaning out my pocketbook.

But I would totally be interested in this. I'll have to contact my brother and get the number for their naturalpath. I hear she's great. I must break down and go see her once I have the money.
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This area is under construction as my hair type changed and nothing works well for me. I shampoo, I condition and pretty much have done nothing but chuck my hair in a messy bun for the past oh...year? Yeah, I'm that lazy.

No...going no-poo or CG does not work for me. It leaves me overconditioned and oily in a second no matter what I use, so that's not what's not working.
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Old 05-27-2008, 02:52 PM   #14
 
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My cat (RIP) was on it long term for a while. I don't know if his hair fell out because his hair always fell out and he always had plenty left over.
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Old 05-27-2008, 07:40 PM   #15
 
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My DH takes this regularly to control his eczema also but he has his all over his body. He said hair loss does happen to some people. BTW what's homeopathy? Anything to help my DH improve with his skin!
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Old 05-28-2008, 05:26 PM   #16
 
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I have the fingertip eczema (Pompholyx). That stuff hurts and itches.

I have a cream that comes in an orange and white tube. It's at home and I can't think of the name right now. It's a prescription. I can get the name of it when I get home from work. I don't know if you've tried this particular one already.

For the longest time, doctors said it was a fungal infection. I took several courses of that prescription Lotrimin stuff but of course it never went away. I finally found a derm who knew what it was, when I was 34. I've had it since I was 15.

This cream really works for me. It doesn't cure it. Supposedly eczema is incurable. At least it stops my fingers from peeling and bleeding, though. It seems to work for a long time for me. I usually have to throw out the tube before I'm finished and get a replacement.

Homeopathy sounds good, too. I'm about to embark on a dairy-free, low glycemic index diet in hopes of finally clearing my recalcitrant acne. I've considered homeopathy for that as well. I'm still researching my new diet right now.
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Old 05-28-2008, 09:02 PM   #17
 
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I saw the following on Dr. Weil's natural health site when I was researching the problem in the past. I haven't tried any of the suggestions, but in an "all else fails" situation, it might work.

http://www.drweil.com/drw/u/id/QAA357146

If you have nickel allergy, it can cause flare-ups. There are also some suggested supplements to take.

The topical cream I use is called Vanos. I don't know that it would work for you though since you've tried the topicals in the past.
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Old 05-28-2008, 09:19 PM   #18
 
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I saw the following on Dr. Weil's natural health site when I was researching the problem in the past. I haven't tried any of the suggestions, but in an "all else fails" situation, it might work.

http://www.drweil.com/drw/u/id/QAA357146

If you have nickel allergy, it can cause flare-ups. There are also some suggested supplements to take.

The topical cream I use is called Vanos. I don't know that it would work for you though since you've tried the topicals in the past.
That was a cool article. Unfortunately, I've been tested and I'm not allergic to nickel. But it is intriguing to see that they recommend taking a supplement like Evening Primrose Oil. I'd give that a try.

And for the most part, the steroid creams/ointments they give me to stop the eczema from advancing works okay. It's only if the creams/ointments don't stop it that I have to pop the prednisone.
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This area is under construction as my hair type changed and nothing works well for me. I shampoo, I condition and pretty much have done nothing but chuck my hair in a messy bun for the past oh...year? Yeah, I'm that lazy.

No...going no-poo or CG does not work for me. It leaves me overconditioned and oily in a second no matter what I use, so that's not what's not working.
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Old 05-29-2008, 01:50 PM   #19
 
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Quote:
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BTW what's homeopathy?
Here's some info on homeopathy: http://abchomeopathy.com/homeopathy.htm

ETA: I don't know anything about this site, I just did a quick Google search. I didn't think I could explain it well enough on my own.
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Old 05-29-2008, 11:12 PM   #20
 
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Okay, revisiting this Evening Primrose Oil idea. I've read some very intriguing information about this stuff, so decided to give it a try. It's supposed to be good for eczema, PMS and normalizing out of whack hormones...all of which I suffer from.

Okay, I'll give this dang thing a fair chance, but these damn pills are big enough to choke a horse. And it's not like you just take one pill...noooo...you take 3 per day! THREE people! That's like...THREE pills a day! I'll keep you posted on the results.
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This area is under construction as my hair type changed and nothing works well for me. I shampoo, I condition and pretty much have done nothing but chuck my hair in a messy bun for the past oh...year? Yeah, I'm that lazy.

No...going no-poo or CG does not work for me. It leaves me overconditioned and oily in a second no matter what I use, so that's not what's not working.
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