Alopecia

Two months ago I was diagnosed with central centrifugal cicatricial alopecia (CCCA) or scarring alopecia.

My dermatologist has me on a low dose antibiotic and prescription foam to help with the inflammation, redness and itchiness. This should also stop any hair loss I’ve already experienced. Luckily, I don’t have a big bald patch like some of the pics I’ve seen but what scares me is that it could spread.

What makes me kinda mad is that I have been natural since 2001 and have had gone to 4 different beauticians to get my hair straightened and the 4th one was the one that told me I was thinning in that area. It is at the top my head and the only way you can see it is if you are doing my hair (I can’t see it when I am styling my own hair).

Thankfully we (me and my doc) think we caught it in time and the follicles might not be completely damaged. But dag help me out if I am paying you to do my hair!!

Sorry about the rant but I am mad and a little scared.
Relaxer free since 12/2001...

Mostly 3c with 4a in the back.

Last edited by mosxy5; 12-12-2008 at 07:15 PM. Reason: spelling
Join Date: Mar 2008
Posts: 15,533
Sometimes I think stylists exist in a separate reality from the rest of us.........maybe they thought they were doing you a favor by not mentioning the thinning? Still, the fact that investigating it led to a diagnosis sounds pretty serious, so I'm glad someone finally said something.

I hope the medications help. I'd be angry and scared too. ((((hugs))))

Last edited by ninja dog; 12-12-2008 at 06:14 PM. Reason: spelling
Thanks. Sometimes I think that too about stylists. I just keep thinking that the 1st 3 would've kept tugging and jerking at my hair til it all fell out.

I try not to be worried and I need to stop doing google searches. I knew something was up when the 1st thing the dermatologist said after she looked at my scalp was "I need to do a biopsy".

What sucks is I can't do microbraids or high buns...and I am staying away from flatirons and high heat for at least a year. We'll see what happens...
Relaxer free since 12/2001...

Mostly 3c with 4a in the back.
Join Date: Mar 2008
Posts: 15,533
I wonder what they would have said had your hair actually fallen out in their hands......somehow, I'm guessing they wouldn't have admitted to ignoring a problem. I've had stylists who didn't listen to me at all say, "I've never had someone complain before." Right...........

Google searches can be VERY scary. I had a misdiagnosis about a high white blood cell count a few months ago, and all the searches I did just scared me even sillier. But my God, hearing a doctor say "biopsy"? Terrifying!

Are you letting your hair be natural? Did the doctor say doing so would be best? There are also specialists for hair ---trichologists--- (I think that's the word); have you consulted one?

Keep us updated.........
Right!!! They would've had a handful of my hair in their hands and then asked me what I did to it.

Google is the devil....lol. I am forcing myself to stop doing that. The doc explained what she was going to do...after that I was calm and actually wanted to see her do the procedure.

I am thinking about consulting a trichologist if this doesn't work. I am all natural. Low/no heat and low manipulation. I can do twist outs and wash & gos. I am going to miss doing buns though. I want to go a year with this process and see what happens.
Relaxer free since 12/2001...

Mostly 3c with 4a in the back.
Join Date: Mar 2008
Posts: 15,533
I hope that with the new stylist and the dermatology recs., all goes well!
Someone here turned me on to Killer Strands blog a month ago and I'm still reading my way through it, but she does talk about alopecia. Might be worth checking out.
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Someone here turned me on to Killer Strands blog a month ago and I'm still reading my way through it, but she does talk about alopecia. Might be worth checking out.
Originally Posted by susancnw
Thank you!! I am going to check it out...I have a little free time at work right now so I hope I can access it from the office.
Relaxer free since 12/2001...

Mostly 3c with 4a in the back.
mosxy - who was able to diagnose you? a dermatologist? i have been to 2 different ones now that just say "oh your hair loss is just natural" "its just catching up with you since you are not taking birch control anymore"

i always have had a small 'bald spot" at my crown, but now that i have this thinning hair (over the course of a year at this point) i notice that the area is larger, and that i actually have to work to cover it sometimes

so frustrated. i used to have nice hair
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