Celiac & gluten in products

Hi,

I'm planning on getting tested for Celiac disease, as my mother is convinced she has it and I have many of the symptoms. Anyway, I just read that people with Celiac should avoid not only ingesting gluten (from grains such as wheat), but should also avoid contact with gluten on their skin--meaning lotions, soap, shampoo, make-up, etc., should be gluten-free.

Has anyone dealt with this problem? Are the DevaCurl products okay (the no-poo lists "wheat amino acids," but I don't know if that means it has gluten?

Laura
Laura
a 3A, sometimes more like 2A, living in hot and humid Mississippi
I have been gluten free for almost a year. It is my understanding, that years ago you were advised against using anything on your skin with gluten (beware of publication dates on books). Modern information indicates this is not a problem. This is a relatively "new" condition, and information is changing rapidly. Do your research, no matter what your doctor or relative tells you (check out the websites of celiac disease foundation, gluten intolerance group of america and celiac sprue to start). My cousin hasn't kept up on the new information and really limits her diet. Doctors are still learning about it and their information may be out of date. My symptoms are mild, so I can't speak to reactions--but I do use DevaCurl and Jessicurl.
Modified CG since 9/03. 2B/3A. JESSICURL!!! Gentle Poo, Aloeba, Gelebration, Awe; or Mop Top Poo & Condish; Curlisto Mousse & Gel I. Winter: Elucence MB Clarify, Shampoo & Conditioner. ACV & honey rinses. Plop & Pixiecurl diffuse. Password: curls
OH, I forgot. I am glad this topic keeps coming up, because one of my symptoms was losing hair (not absorbing enough nutrients in digestive tract?) and excema on my scalp to the point of me pulling out chunks of hair! Gross, I know. The only tests for celiac are a blood test and genetic testing. It's my understanding that this isn't definitive--the best way is to give up gluten for a week. That's what I did, and immediately saw my scalp and hands heal, lost 4 lbs (that I needed to lose), relieved bloating and constipation. The symptoms are wide ranging and different for each individual. It does run in families (my cousin and sister--but our symptoms are all different!) I'm convinced many excema sufferers could benefit, and also believe the success of the atkins diet could have been people can't digest wheat feel better when they eliminate it!
Modified CG since 9/03. 2B/3A. JESSICURL!!! Gentle Poo, Aloeba, Gelebration, Awe; or Mop Top Poo & Condish; Curlisto Mousse & Gel I. Winter: Elucence MB Clarify, Shampoo & Conditioner. ACV & honey rinses. Plop & Pixiecurl diffuse. Password: curls
Well, that's a relief to hear. I thought that avoiding contact with skin sounded like it was going too far. I have done a lot of research online and understand the difficulties of Celiac diagnosis. I'm determined to be assertive at the doctor's office (he previously diagnosed me with IBS), but I've been determined before and wimped out.

My mother has had much improved skin after she went gluten-free (and actually she was getting a bald spot, and her hair stopped falling out, but that could've been from menopause, too). I had a lot of problems with my scalp as a kid and still have dry scaly spots sometimes. Your idea about why people feel better on Atkins is really interesting.
Laura
a 3A, sometimes more like 2A, living in hot and humid Mississippi
That's interesting to read about blood tests not entirely definitive. I had a blood test for this last year and it was negative. I have terrible problems with bread, pasta, cereal, etc. I've been losing a lot of hair lately--just thinking its a summer thing though.
2C/3A auburn hair.
between shoulders and BSL
Gluten in skincare products depends on the level of severity of the individual.

I'm a coeliac and know that I can't touch wheatgerm oil - it burns my skin, so I have to wear gloves when I am decanting it for clients.

I manufacture my own shampoos and conditioners, and use camellia oil, cocoa butter and shea butter on my skin as a moisturiser.

I bought a deep conditioning treatment the other week when I was away, it didn't have anything listed on it that I knew by ingredient that I was allergic to. After 1 minute my scalp was burning, I put my hands up to start rinsing it off and I was bleeding - it turned out it was a wheat protein under some fancy new biological name.
Medical Aromatherapist,
Manufacturer of Natural Bodycare products, and naturally red Type 3A Hair
The avoiding touching gluten depends on the person. Usually those that have the gluten induced rash tend to avoid it in shampoos and soaps etc. So I've read..... for me I'm fine so far with not worrying about my soaps and shampoos although some things do make me itch and make a slight temporary set of hives come up. So I tend to avoid those. I've always had super sensitive skin but it bounces back fast.

I got the hair thinning too. I wish I had known what I know now years and years ago. My tests didn't show diddly but cutting out wheat from my diet has made a world of change already. This year I was already taking some hair supps (probably too much once I'm gf for a while but for now I'm absorbing enough to keep my hair in place) I did start a spring shed but it's a few of the longest hairs. I didn't get the all over thinning that I did last year thankfully. I swear that was so scary!

I still use the DevaCurl products. You can call the company and ask if they are gluten free to be safe but I don't think anything that says wheat on it in any form would be GF.
2c/3a?
Low porosity, medium texture.
http://public.fotki.com/Medusahair/

If it smells good put it in your hair, if it tastes good spit it out!
Wow! I had no idea I'd find so many other fellow curlies who are wheat/gluten intolerant like I am, now I don't feel so "alone" .

I've never been tested but I don't consider it necessary, my father had this disease (and actually died as a consequence of it) and it's usually hereditary but I really began making my personal connection after I did Atkins the 2nd time and my puffy face was transformed after 2 days on it. I knew carbs in general had that "bloating" effect though but then I read "Live Right For Your Type" and felt convinced that as all blood type O I didn't do well on wheat. I once lost 6 lbs. in about 48 hrs. after stopping wheat, it had seemed to me those pounds had crept up on me "suddenly" too and I felt bloated, depressed and just not well all over. I then realized that during the course of that week I'd eaten wheat several times. Since then I've done a lot of reading about it, especially at www.celiac.com and I'm sure lots of people who have been diagnosed with IBS are really only gluten intolerant. I think we should all spread the word to our friends and relatives because probably the reason this is so common today is due to the hybridization and refining of grains.

I can't say I've been 100% wheat free since I realized it was a problem for me but since I immediately can feel the bad effect (my nasal congestion gets worse) cheating is not something I do often or lightly and last year I found at a health food store an enzyme which is supposed to help digest gluten (DPP IV Protease) so if I do "cheat" I make sure to take it.

Recently I bought several different types of flours and plan to do my own baking, if anyone has some good and EASY recipes for cakes, cookies and/or breads please PM. I've done searches and I know there's a lot of recipes out there, however, I'd rather try something someone else recommends and can make a personal comment about.
2A/3A, medium length, layered, colored dark/medium ash blonde - "CGer" since April '02.

"Converting the 'curlskeptics' one curly head at a time..." HWHC
I forgot I had a link to gluten free hair products. Someone from the board uses them but I can't remember who.

http://gfsoap.com/shampoos.html
2c/3a?
Low porosity, medium texture.
http://public.fotki.com/Medusahair/

If it smells good put it in your hair, if it tastes good spit it out!

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