fibromyalgia?

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[QUOTE=spring1onu;2121761]
I take thyroid medications in the morning so I've got to double check to see if any of the supplements should be avoided in combination with those and figure out a schedule. I'm finally going to have to get one of those AM/PM vitamin boxes like my grandmother had.

QUOTE]

I have one of those am/pm and have for years now. =(
My husband gets up at 4am so he tends to wake me up so I take my thyroid meds and systemic enzymes then and just take the rest of my supps late morning (I have a reminder on my phone)
Minerals (magnesium, calcium, iron, etc) and thyroid meds need to be separated by hours according to the mag experts
I think this is a timely article that arrived in my email today Healing Meditation

Hope everyone feels better today! (((HUGS)))
Crimson, thanks for that information. I'll have to try setting my phone to remind me, I never to think to use it for reminders, but that's a great idea. Right now it's easy for me to remember when to take things because I do my thyroid medications in the morning and just take my magnesium, B12 and D3 after I have dinner so it's really easy with my routine. If I've got to take my new magnesium twice a day, but need to wait 4 hours after I take my thyroid medication then I'll have to really pay attention which I'm never good at doing. Maybe I need an AM/Midday/PM pill box.

The magnesium flakes will be here tomorrow, talk about fast shipping!




Byron,GA> Charleston, SC> Jacksonville, FL> Guilford, CT> Rohnert Park, CA! A southern drawl in sunny Cali! .
The amount of time from slipping on the peel and landing on the pavement is exactly one bananosecond.
I do have a secret yen for pink in unexpected places. ~ninja dog
I've decided that I'll never get down to my original weight, and I'm OK with that--After all, 8 pounds 2 oz. is just not realistic.
Maybe I need an AM/Midday/PM pill box.
Originally Posted by spring1onu
I have those at home and a mini one in my purse
So I got my two magnesiums yesterday and now I'm trying to figure out the best schedule to take them.

Do I take a malate with lunch then a glycinate with dinner, perhaps?

I think the ribose and other supplement will be here early next week so I'll figure how to incorporate those two then. One thing at a time!




Byron,GA> Charleston, SC> Jacksonville, FL> Guilford, CT> Rohnert Park, CA! A southern drawl in sunny Cali! .
The amount of time from slipping on the peel and landing on the pavement is exactly one bananosecond.
I do have a secret yen for pink in unexpected places. ~ninja dog
I've decided that I'll never get down to my original weight, and I'm OK with that--After all, 8 pounds 2 oz. is just not realistic.
Mag needs to be taken twice a day.... it's how your body best absorbs it and you have to spread out larger doses. you cant take 1000mg at one time. i would only take 400mg at a time.
You can take capsules which are smaller but less mgs... Usually around 100mg. But mag is big unless you use the non-absorbable form like mag oxide which you dont want to use because it's useless. The malic acid in magnesium malate is very helpful for fibro. Supplement the oral mag with mag oil. A good mag oil is about 100mg per 8 sprays. A foot soak with 2 cups mag chloride flakes is around 15 g of mag.

For sleep, have you tried melatonin and herbs? Several rx'd sleep meds actually interfere with sleep so you have to be careful. I use the Sleep Tonight and Revitalizing Sleep Formula both by Enzymatic Therapy. I still add tons of other herbs because I have serious sleep problems but besides Xyrem, the herbs have worked better than ambien, lunesta, remeron, etc etc. not sleeping makes everything worse and just depletes your adrenals even more. Dr Sara Gottfried had a lot of info about cortisol and how it affects everything. I've read her blogs/articles and listened to several podcasts and absolutely live her.
Hang in there!
Originally Posted by crimsonshedemon

I never have problems falling asleep or staying asleep; I sleep ike a rock. But I suspect the quality of sleep I get isn't that good bc I can barely wake up and I'm often brain-foggy.

So I just started taking melatonin and it really seems to help! Helps me get up easier and not feel so achy and tired during the day.

At least I think it does...I hope it's not a placebo effect.
3b (with 3c tendencies) on modified CG

So i went to the rheumatologist yesterday and was told that i basically do have fibromyalgia. However they need me to do all these tests that my insurance is not covering. I can't really afford to have them done and pay my specialist copays.

I don't know what to do.

It ended up being a specialist visit bc i thought the doctor was also a primary doctor and he is not. So i need to see a primary doctor bc i also need to treat my Bipolar disorder.

Im so lost. So what i did yesterday was went to the drug store and bought some 500mg acetaminophen. I'll just take those to help ease the pain bc i can't afford to have those tests done right now.

Its a shame i have health insurance and i still can't afford to get the help i need. I cried for a very long time yesterday. Im in the middle of trying to get a car bc i cannot keep catching the bus in my condition. I also was told i have chronic lymphedema in my foot, so walking everywhere really isn't good for me right now, it hurts.

I think im gonna just pause my treatment until the end of April. Hopefully by then my finances will be in order.

Sent from my LG-LG730 using CurlTalk App
2yrs 7 months post relaxer/2 years and 11 months natural

Cleanse: SM Moisture Retention or Suave Naturals shampoos
Co-Wash: Suave Naturals, L'Oreal EverCreme or EverCurl
RO/Detangler: Tresseme Naturals, GVPCB
Leave-In: SM Curl Enhancing Smoothie, TN, GVPCB
Styler: EcoStyler, GF Pure Clean gel, KCCC

Just discovering my hair likes protein!

Oh yeah. I found some magnesium malate in Whole Foods yesterday. It was like $10 so I'll go back and get it when i have money.

My friend took me there to see what i could use after i told her what i learned at the doctor's office.

Today i am basically doing nothing but sleeping. It feels so good to finally rest. I took two of the acetaminophen this morning when i got up bc i felt stiff and achy. Turned out it was raining outside, that usually causes me to flare up, but it was really bad last nite due to me being out in the moist nite air.

I hate this so much. But its nice to know for sure what it is.

Sent from my LG-LG730 using CurlTalk App
2yrs 7 months post relaxer/2 years and 11 months natural

Cleanse: SM Moisture Retention or Suave Naturals shampoos
Co-Wash: Suave Naturals, L'Oreal EverCreme or EverCurl
RO/Detangler: Tresseme Naturals, GVPCB
Leave-In: SM Curl Enhancing Smoothie, TN, GVPCB
Styler: EcoStyler, GF Pure Clean gel, KCCC

Just discovering my hair likes protein!

So i went to the rheumatologist yesterday and was told that i basically do have fibromyalgia. However they need me to do all these tests that my insurance is not covering. I can't really afford to have them done and pay my specialist copays.

I don't know what to do.

It ended up being a specialist visit bc i thought the doctor was also a primary doctor and he is not. So i need to see a primary doctor bc i also need to treat my Bipolar disorder.

Im so lost. So what i did yesterday was went to the drug store and bought some 500mg acetaminophen. I'll just take those to help ease the pain bc i can't afford to have those tests done right now.

Its a shame i have health insurance and i still can't afford to get the help i need. I cried for a very long time yesterday. Im in the middle of trying to get a car bc i cannot keep catching the bus in my condition. I also was told i have chronic lymphedema in my foot, so walking everywhere really isn't good for me right now, it hurts.

I think im gonna just pause my treatment until the end of April. Hopefully by then my finances will be in order.

Sent from my LG-LG730 using CurlTalk App
Originally Posted by SmilingElephant
Why isn't the insurance covering them? Are they being coded properly?
Ask if they're mandatory?

It can be overwhelming but take one step at a time. Addressing fibro in a holistic fashion usually gives the best results- eat a clean diet, exercise, adequate sleep, supplements and medications. Remember every medication depletes nutrients which causes side effects.... replace those nutrients and you fend off many side effects. Unfortunately, most drs don't even address this issue... they just keep giving you more prescription meds. I was taking almost 20 rx meds daily because of this... ridiculous!

If money is tight, definitely look online for supplements. The prices are half of what they are in a local store. I get 360 tablets Source Naturals Mag Malate 1250mg for 18$ At my local stores, it's over 35$. Shop thru extrabux and earn money back.
Magnesium oil is a cheap way to get magnesium into your body too. I'm doing daily foot soaks and really enjoy them. Just enough water to cover my toes and 2 oz of mag oil.

I just ordered more ribose since Puritan's is having a sale. Got a 250 gram tub for 16.20$ amazing price! 5 tubs for 90$ and earned 10% back, free shipping.

Dr Teitelbaum has a ton of info on his website Vitality 101 and in his book From Fatigued to Fantastic. His protocol is quite comprehensive... wish more drs would get on the ball and use a more comprehensive approach.

With fibro, you don't need a specialist just someone who understands it. It's better to find a dr who wants to help you and knows how to help you. I use a family physician. Have seen 5 rheumies and 4 were horrible. I have lupus also and don't even use a rheumy right now because my dr understands lupus also. If I ever have kidney failure or other major organ involvement, then I'll have to see a rheumy but until then, my dr monitors my labs and writes my prescriptions. Cheaper and easier to get into also... a lot more caring too.
So I got my two magnesiums yesterday and now I'm trying to figure out the best schedule to take them.

Do I take a malate with lunch then a glycinate with dinner, perhaps?

I think the ribose and other supplement will be here early next week so I'll figure how to incorporate those two then. One thing at a time!
Originally Posted by spring1onu
Mag glycinate is very relaxing so after dinner is perfect.
Malate in the late morning (4 hours after thyroid meds)
Be sure to start slow.

Ribose- just whenever. I add it to coffee, my nutrient smoothie, yogurt, wherever.
spring1onu likes this.
I never have problems falling asleep or staying asleep; I sleep ike a rock. But I suspect the quality of sleep I get isn't that good bc I can barely wake up and I'm often brain-foggy.

So I just started taking melatonin and it really seems to help! Helps me get up easier and not feel so achy and tired during the day.

At least I think it does...I hope it's not a placebo effect.
Originally Posted by spiderlashes5000
That's great. Even if it's a placebo..it's a good thing. Quality sleep is vital and few meds can help unfortunately. It's the area I struggle with the most and the fall out of not sleeping.
Thanks Crimson. I think I'll go the family physician route.

The insurance isn't covering them because i have not met my deductible yet -____- its so stupid to me. I just got my health insurance through my job back in January.

Im also needing to find a doctor that can see me on Saturdays since my job is so finicky about approving days off.....even if its a doctor's appointment. They dont even ask u what u are requesting the day off for. Im just in a very overwhelming situation right now.

Im thinking about applying for disability again and trying to see if i would qualify. I dont know how much longer i can keep going with the stress of working.

Ive been thinking about working from home also. Anybody here do that? I could work full time...its just the stress that comes with the policies and the numerous deadlines and quotas that need to be met and management not caring whether or not u die. Its just really overwhelming for me.

Sent from my LG-LG730 using CurlTalk App
2yrs 7 months post relaxer/2 years and 11 months natural

Cleanse: SM Moisture Retention or Suave Naturals shampoos
Co-Wash: Suave Naturals, L'Oreal EverCreme or EverCurl
RO/Detangler: Tresseme Naturals, GVPCB
Leave-In: SM Curl Enhancing Smoothie, TN, GVPCB
Styler: EcoStyler, GF Pure Clean gel, KCCC

Just discovering my hair likes protein!

So I got my two magnesiums yesterday and now I'm trying to figure out the best schedule to take them.

Do I take a malate with lunch then a glycinate with dinner, perhaps?

I think the ribose and other supplement will be here early next week so I'll figure how to incorporate those two then. One thing at a time!
Originally Posted by spring1onu
Mag glycinate is very relaxing so after dinner is perfect.
Malate in the late morning (4 hours after thyroid meds)
Be sure to start slow.

Ribose- just whenever. I add it to coffee, my nutrient smoothie, yogurt, wherever.
Originally Posted by crimsonshedemon
I just dump the ribose powder on my tongue and crunch it up, not that it needs to be chewed but I do it anyway, and then wash it down.

smilingelephant - I understand exactly how you feel! There are some doctor's offices that have late evening hours and Saturday hours. There is one in a small town near me that is like that. They do not require an appointment and they are even open for a few hours on Sunday. They bill as a primary care physician, so it's wonderful. I hope you can find someone like that. What kind of tests did they want to do? There are no blood tests for fibromyalgia so are they trying to rule out other conditions or look for vitamin or mineral deficiencies?
Thanks Crimson. I think I'll go the family physician route.

The insurance isn't covering them because i have not met my deductible yet -____- its so stupid to me. I just got my health insurance through my job back in January.

Im also needing to find a doctor that can see me on Saturdays since my job is so finicky about approving days off.....even if its a doctor's appointment. They dont even ask u what u are requesting the day off for. Im just in a very overwhelming situation right now.

Im thinking about applying for disability again and trying to see if i would qualify. I dont know how much longer i can keep going with the stress of working.

Ive been thinking about working from home also. Anybody here do that? I could work full time...its just the stress that comes with the policies and the numerous deadlines and quotas that need to be met and management not caring whether or not u die. Its just really overwhelming for me.

Sent from my LG-LG730 using CurlTalk App
Originally Posted by SmilingElephant
I just met my deductible... I just make payments... lots of monthly payments.

Disability- yikes! I say that because it's very difficult to get. From what I've learned, you can't work while applying for SSDI. So you have to be without an income. Also, since you have bipolar, go that route primarily! It's easier to get disability with a mental health issue... almost impossible for fibro alone. Make it all about your mental health. My husband's cousin says she's bipolar and couldn't work, got on to disability, went to college, graduated then magically didn't have bipolar anymore and moved several states away to take a job as a correctional officer. Lasted a few months before she quit.

I've never worked fulltime for more than a few months at a time and worked only part time for 5 years. I don't qualify for SSDI and because my husband works, no SSI.
We're starting a vanpool business... carpooling but in vans. Everyone (they all work at the same place) meets at a location and get into the van. They pay me for providing the van, gas, insurance, etc. One of the workers drives the van. I just need to deal with maintenance and paperwork. State of CA reimburses each worker for vanpooling so it costs each worker 80$ to get to work for the month. It used to cost us 500$ for hubby to drive to work each day and now 80$
This is my job since hubby works full time along with a ton of overtime.
SmilingElephant, I'm so sorry. I don't have any advice to offer, but know I'm thinking of you.


Mag glycinate is very relaxing so after dinner is perfect.
Malate in the late morning (4 hours after thyroid meds)
Be sure to start slow.

Ribose- just whenever. I add it to coffee, my nutrient smoothie, yogurt, wherever.
Originally Posted by crimsonshedemon
Thank you! That's what I've been doing, just taking one pill each for now because I already have stomach issues and don't want to upset the apple cart.

Adding the ribose to coffee and my daily smoothie will work perfectly since those are two things I have every single day. Good to know I can just crunch it up if needed as well.




Byron,GA> Charleston, SC> Jacksonville, FL> Guilford, CT> Rohnert Park, CA! A southern drawl in sunny Cali! .
The amount of time from slipping on the peel and landing on the pavement is exactly one bananosecond.
I do have a secret yen for pink in unexpected places. ~ninja dog
I've decided that I'll never get down to my original weight, and I'm OK with that--After all, 8 pounds 2 oz. is just not realistic.
SmilingElephant, I'm so sorry. I don't have any advice to offer, but know I'm thinking of you.


Mag glycinate is very relaxing so after dinner is perfect.
Malate in the late morning (4 hours after thyroid meds)
Be sure to start slow.

Ribose- just whenever. I add it to coffee, my nutrient smoothie, yogurt, wherever.
Originally Posted by crimsonshedemon
Thank you! That's what I've been doing, just taking one pill each for now because I already have stomach issues and don't want to upset the apple cart.

Adding the ribose to coffee and my daily smoothie will work perfectly since those are two things I have every single day. Good to know I can just crunch it up if needed as well.
Originally Posted by spring1onu
Oh lord. I have issues. I read the magnesium times wrong somehow and flipped them. Will try to straighten it out tonight.....

Why is everything so hard for me sometimes??? Maybe because I am flaring
I'm so surprised I didn't do the same thing, GC!

How I remembered is Magnesium Malate = MM = MM Morning (well, mid-morning since I can't take it first thing). So all those M's help me remember to take it first until I get an appropriate pillbox.

Mag glycinate somehow sounds like 'night' to me? I have no idea how.




Byron,GA> Charleston, SC> Jacksonville, FL> Guilford, CT> Rohnert Park, CA! A southern drawl in sunny Cali! .
The amount of time from slipping on the peel and landing on the pavement is exactly one bananosecond.
I do have a secret yen for pink in unexpected places. ~ninja dog
I've decided that I'll never get down to my original weight, and I'm OK with that--After all, 8 pounds 2 oz. is just not realistic.
I'm so surprised I didn't do the same thing, GC!

How I remembered is Magnesium Malate = MM = MM Morning (well, mid-morning since I can't take it first thing). So all those M's help me remember to take it first until I get an appropriate pillbox.

Mag glycinate somehow sounds like 'night' to me? I have no idea how.
Originally Posted by spring1onu
I like how you remember the difference! I may try that but . . . I even labeled them incorrectly with a sharpie

I also packed my lunch today and left it at home and then dropped my keys between the driver's seat and the driver's door to lock them in the car once I got to work. So yes, I ate lunch prepared by the grill at the local Sheetz. As soon as I finished eating, hubby called me back and told me where the hide-a-key is.

My whole day is like this:



FIBROFOG!!!!!
Another thing...Make sure to know your vit d level. You want it near 70-80. A very low vit d can cause fibro symptoms. Mag will help your body convert vit d to an active form and your levels will raise in time. I still supplement with 5000iu a day.

Vit D and iron are about the only 2 blood tests that are highly accurate so forgoing others is ok at this point. Need more precise testing for the other vitamins/minerals.
I was vit-d deficient at one time, but it's been remedied and I take a 5000iu every day as well.

That's a good thing to bring up though, it's an important thing to have checked!

GC, I think today is just an off day all around because it's not been treating me too well today either. Im'ma kick today in the THROAT!! For both of us.




Byron,GA> Charleston, SC> Jacksonville, FL> Guilford, CT> Rohnert Park, CA! A southern drawl in sunny Cali! .
The amount of time from slipping on the peel and landing on the pavement is exactly one bananosecond.
I do have a secret yen for pink in unexpected places. ~ninja dog
I've decided that I'll never get down to my original weight, and I'm OK with that--After all, 8 pounds 2 oz. is just not realistic.

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