Does anyone suffer from migraines?

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Hugs to all you fellow sufferers. I started getting migraines when I was 8 so I've had them for 44 years now with no end in sight (I'm not hopeful they will end as my father still has them at 80). I've had them last up to 20 days.

I've never had auras or warnings. They used to switch from side to side but now they are pretty much all over. If they go on for too long they will make me throw up. I am bothered by light and sounds. I used to be able to get rid of them sometimes if I could get to sleep for a few hours. But recently I've started getting them WHILE I sleep. This is not a good thing! But I have rarely missed school or work because of them. I refuse to let them put me in hiding most of my life.

My main triggers are changes in weather, hormonal changes, and alcohol. Lots of other minor triggers - sleeping on a different bed with a different pillow, strong perfumy scents (gave up shopping in malls years ago), repetitive noises, flourescent lights, certain foods, etc.

I've tried most every drug to come down the pike, legal and not so legal. I was taking full strength Darvon by the time I was in 4th grade. And everything else from Inderal to Percocet to Thorazine (the list pf meds is probably 30-40 items long). I've tried many types of alternative medicine, herbs, vitamins, supplements. I've tried changes in eating, sleeping, exercise, etc.

But basically I still get migraines 15+ days every month. Thanks to the triptan family of meds I rarely end up in the ER, rarely miss out on events, and my life is so so much better. They are expensive and they aren't covered by my insurance so I get them from India for about 1/10th the cost of getting them here in the US.

I want to add that pain meds can be a huge enemy of migraine sufferers. They can sometimes make headaches worse instead of better and often cause rebound headaches. This is much less likely to happen with antidepressants, anticonvulsants, neurological meds (like Inderal, Topamax), vaso-constrictors (the triptans like Maxalt, Zomig, Imitrex).
Dealing with migraines can be like dealing with curly hair - it takes lots of research, lots of experimenting.

Sorry that was so long. But I've had them for a long time. : )
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Last edited by jeepcurlygurl; 05-01-2012 at 01:36 PM.
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Last edited by cympreni; 06-06-2014 at 09:40 PM.
I have migraines. They're not frequent though. Smells don't always trigger them, but they do make them worse.

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I don't have pain until the aura starts to go away either! Although my aura can last anywhere from 10 minutes to hours. Usually if I catch it really quick and drink an ENORMOUS amount of water and take a bunch of advil I can get fend it off and not get the pain at all.
Originally Posted by Who Me?
This is me too! I've never tried drinking lots of water, but if I pop tylenol at the start of the aura, usually I won't get the nausea/vomiting and the pain. I consider myself really lucky that this often works. I have to be vigilant though because they keep coming back days or a week or so in a row.

Hormones and stress are my biggest triggers, and what can you really do about those?
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Last edited by diaspora; 05-01-2012 at 08:25 PM.
I saw a special that mentioned how juicing fruits and vegetables daily helps minimize and in some cases prevents migraines.


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I juice - makes no difference.

Plenty of water is always the first thing I try with any headache, migraine or not, to counteract any dehydration that may be contributing. Other pain relievers work with other headaches, just not with my migraines.

The only medication that has ever helped at all is Excedrin Migraine, or generics of it - I have to catch it early, though. Even before EM came along, regular old Execedrin or Vanquish, which appear to be the same ingredients and same dosage, used to work - something about that caffeine/aspirin/acetaminophen combo. Even it only works if I take it early with a caffeinated diet drink . Some headache powders contain the same active ingredients, and I know people who swear by them - with a caffeinated chaser, but I could never stand to take them.

I usually don't get pain until after the first aura, but that's not always the case. Sometimes I'll wake with a headache and realize immediately that I'm also in the middle of an aura. After I've had one aura, sometimes they'll keep coming as the pain develops.

Fortunately, though, it's usually only one or two auras - they start out as an inability to focus in a small area of my central division, then gradually over the next few minutes enlarges to a zig-zag circle that gradually opens into a half circle, getting larger, and larger until it gradually begins to disintegrate as it nears the periphery of my vision and then gradually disappears altogether - usually lasts 20-30 minutes, start to finish.

While they're going on, I can do about anything except read or focus in clearly on something, unless I also have a doozy of a headache going on. My headaches used to be classic one-sided migraines, but now that's not always the case - can be my whole noggin now. Most often it's the left side of my head, from behind my eye, all the way down into my neck.

Almost 20 years ago I had an aura one morning - before I knew about them or what to call it - then about an hour later, my vision began to seem blurry and got gradually worse over a couple of hours until I was extremely nearsighted. I panicked thinking I was having a stroke or something. Went to the dr., and they ran all sorts of tests but could find absolutely nothing to be causing it.

I was finally just sent to an opthalmologist, got a new prescription for strong glasses and went about my business - for two days. Woke up the third, and my vision was fine again. Needless to say, the eye doc was rather perturbed with me, having to change my prescription again. I think he thought I was lying about drugs I'd been taking or something, LOL.

Anyway, I'm convinced, and my regular doctor agrees, that was just another type of aura. Thank God, I've never had another like that, although I'm still very paranoid if my vision seems a little blurry! Anyway, all this to say that if you have any sort of weird vision changes, consider that it could be related to your migraines.
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Jeep, alot of your symptoms, etc. sound like mine I feel like I get migraines while I sleep too. I'll wake up in the middle of the night with my head killing me. I don't get aura either, the most I'll get is blurred vision. And I've had migraines that just go on and on, and when I tell the dr. I've had a migraine last for over a week, sometimes up to 2, or memorably, that I couldn't remember the last time I didn't have a migraine (so, you know, over a month), I didn't feel like he believed me. He didn't think it was the same migraine. I felt like it was, it just went on and on.
I can tell the difference between one continuous migraine and rebound. I get rebound from triptans, unfortunately. But I agree with you, triptans are still the best thing they've come out with to treat migraines. I still get alot of relief from triptans - enough so that, when I was working, I rarely had to miss work. I just treated my migraine with Imitrex and Ibuprofen (I can't take Excedrin, it doesn't work for me) and kept working. I've missed a couple of family engagements, but alot less than I normally would if I didn't have triptans.
Jeep, I have alot of the same triggers you do Weather is a big one, and stress. Diet is, so I've managed that. I ate a banana last month even though I knew better, and it just killed my head. First banana I'd eaten in like 4 years, and I just wanted one for some reason. Well, I know better now, LOL. Hormones are a biggie, and I just have to put up with that. Alcohol I avoid.

Oh, and yeah, I just quietly fume when I hear people who whine about their headaches call them "migraines" when they aren't. But then I think, well, you don't know them, maybe they actually get migraines. Sometimes I hear someone I know doesn't get migraines whining about his or her headache, and I do find it annoying though. But as long as I've lived with these migraines, it doesn't irritate me as much as it used to; now I just mentally roll my eyes. LOL

Who Me, you said topomax doesn't work for you. What can you tell me about what you're on instead? Becuase I'm pretty disillusioned with topomax and my nuero is not being open-minded to switching me. I'd love to be able to suggest something else.
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Last edited by Auntie Bubbs; 05-02-2012 at 10:42 AM.
Speaking of, I'm feeling one starting to twinge now... I guess between the wonky weather/humidity fluctuations and the sinus infection it was just a matter of time.

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I had my first migraine on my 21st birthday...ironic as I am not a drinker yet I spent my birthday night praising the porcelain god anyway

I have the same triggers as many on here...most specifically weather/pressure changes, sunlight and other vision things, hormonal timing, and food. I don't know specifically what food but I know when I went vegetarian several years ago my migraines decreased...but they have increased again in the past year and I don't know why.

My headaches are a mixture of just really bad throbbing without any nausea to true nasty nauseated can't get off the couch migraines. If they don't respond at least somewhat to Excedrin Migraine I know I'm in for a bad ride.

Another interesting fact that is good to mention on a hair site:
My migraines were always without aura until I started taking Biotin (for hair health, of course). After I started on biotin I got my first aura migraine which was so scary I thought I was having something more serious. My only thought was to google "brain tumors" and such (though I had to hold my laptop up and sideways to read anything b/c of the aura blocking some of my vision, and then all the words kept "sliding" to the left...it was trippy!!!) Found out what it was and also found out that Biotin can trigger migraines in those with the disorder already. I have had 1 other aura migraine since and I have no idea what caused it.

So, moral of that story...those of you that already suffer from migraines be careful of taking biotin.

Hugs to all you headachey ladies (and gents, if there are any)


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I suffer from occipital neuralgia, which is similar to migraines.

Occipital Neuralgia: Symptoms, Causes, Diagnosis, Treatments, and More
Originally Posted by juanab
I've never heard of that, but my symptoms could be that as well.


I just had a horrible one last night, vomited all night until my throat bled and now I'm hoarse. I feel feeble today.

Some of my triggers are stress, dehydration, hormones, weather changes, strong scents, bright lights, strobe lights, hot dogs or other nitrate meats, red wine....

I've been using Midrin since I was 18. I've tried a few others and they didn't work. I did have an injection of something last time I had a migraine while in the hospital, it might have been Imitrex or something, it worked alright. I've had migraines for 30 years now. They suck. I've never had an aura, but I've gotten blurred vision -- could that be an aura?

If you search for "migraine" here, there should be lots of threads with triggers and symptoms that we've posted. I remember posting on a few.

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I was diagnosed with vestibular migraines. I have bouts of vertigo and tingling in my extremities. Like diaspora, I have many allergies and a GI autoimmune illness, ulcerative colitis. Highly fragrant odors like most perfumes and strong chemicals are immediate triggers. Also, disturbance in my routine sleep pattern, smoke, hunger, and when my allergies/ sinus problems are uncontrolled, I tend to have migraines. I do get headaches, but there have been many times when I didnt have the headache, but had the vertigo, tingling, and/or nausea. My worse episode was violent vomiting with the slightest movement and severe vertigo. My normal BP is too low to take antihypertensive meds, I refuse to take antidepressants, and I had horrible side effects from Topamax. So, I take no meds. Ive heard about Magnesium. I want to give acupuncture a try. Foods don't seem to be triggers for me. I can't take NSAIDS, so I have to sleep the headache off. I take Meclazine for the vertigo. In this life, everyone has something!



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Sounds like a lot of terrible suffering. I'm sorry for all that are in so much pain and so often.

I wonder, as another post mentioned, about diet. I know the OP mentioned she eats a very healthy diet, but we have been very mislead as to what a really truly healthy diet actually is.

I wonder if these foods are removed, if, given a few weeks, would make a difference. I have read another message board extensively and the number one immediate healing that happens when these foods are removed is the disappearance of migraine headaches.

Dairy of all kinds
Poultry and Meat of all kind including Fish
Oils
Any kind of processed food.
Any kind of flour product.
Sugar.

This only leaves the following to eat-
Greens and Vegetables
Fruit
Beans
Whole Grain (brown rice, wheat berries, quinoa etc NOT ground into flour and eaten whole)
Nuts
Seeds

Yes you have to eat a LOT of vegetables each day, 2 pounds! But this diet has proven to cure many many people.

https://www.drfuhrman.com/disease/Headaches.aspx

Whether you are willing to try it or not, it's worth a few minutes to read Dr. Furhman's writing on the subject... who knows, it could be the cure for you. Good luck to you all

Last edited by SusieSuze; 05-02-2012 at 10:27 PM.
Oh, and yeah, I just quietly fume when I hear people who whine about their headaches call them "migraines" when they aren't. But then I think, well, you don't know them, maybe they actually get migraines. Sometimes I hear someone I know doesn't get migraines whining about his or her headache, and I do find it annoying though. But as long as I've lived with these migraines, it doesn't irritate me as much as it used to; now I just mentally roll my eyes. LOL
Originally Posted by Auntie Bubbs
ITA, LOL!


If they don't respond at least somewhat to Excedrin Migraine I know I'm in for a bad ride.

Another interesting fact that is good to mention on a hair site:
My migraines were always without aura until I started taking Biotin (for hair health, of course). After I started on biotin I got my first aura migraine which was so scary I thought I was having something more serious.
Originally Posted by WavyMermaidy
Yeah, if I don't get started early on Excedrin Migraine and/or if it doesn't begin working within about an hour, I know it's going to be a real doozy! Then I just have to live with it - ibuprofen, naproxen sodium or other OTC's don't help and I can't take Imitrex, etc.

I've been taking a biotin/chromium/cinnamon supplement for a couple of years to help stabilize blood glucose, and, oddly, that's about the same time my migraines started to improve somewhat. However, that was also about the same time I entered fullblown menopause. So, I don't know if biotin's a factor at all or if it's hormone related. I hadn't thought about it until this thread, but I've also been taking magnesium for the past couple of years, so maybe that's also helped.

My very first aura was triggered by extremely bright sunlight reflecting off a vehicle in a situation where I was unable to get away from sight of it for an extended period. Bright reflections like that have since contributed to quite a few.


Dairy of all kinds
Poultry and Meat of all kind including Fish
Oils
Any kind of processed food.
Any kind of flour product.
Sugar.

This only leaves the following to eat-
Greens and Vegetables
Fruit
Beans
Whole Grain (brown rice, wheat berries, quinoa etc NOT ground into flour and eaten whole)
Nuts
Seeds
Originally Posted by SusieSuze
I've eaten precisely that way for extended periods many times and, like juicing, it made no difference in my migraines - that's not to say it might not for others, of course.

Have one today - no auras - probably triggered this time by barometric pressure and my personal peak allergy season
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Current Main Rotation: MG217 medicated or Aim2Health 'poos for scalp, YTCarrots or Elucence cond., Spiral Solutions Protein & Deeply Decadent Cond., CJCCCC reg or lite, KCCC, Giovanni LA Hold Hair Spritz + lots more, sporadically

HG Method: Super Soaker + Smasters-ing, brief upside down diffusing w/360o diffuser then clips/clamps & air dry. Newly gray - stopped my henna glosses!

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Last edited by WurlyLox; 05-04-2012 at 08:33 AM.
Ugh I can't take Tylenol or
Excedrin Migraine because whatever is in them makes me thrown up. I can only take Advil/ibuprofen and that isn't strong enough for a migraine for me. I keep trying new prescription medicines, but so far nothing has worked too well. I had one on Monday and I couldn't do anything but lay in my room with all the window shades closed with my sunglasses on. It's always my eyes that feel it first. Not fun.
Have u tried propranolol? It's for HTN but the other use is for migraines. There are also sumatriptans for migraines. And the latest that I have heard are Botox for migraines. Just some thoughts.


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Yes I have tried a sumatriptan and it make me feel worse four about four hours before I began any pain went away. It was absolutely brutal for me. But I just started the antidepressants so I'm going to give this a shot.

If not, I know there are other options out there. Funny, I just heard about Botox from someone else too.

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