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Old 06-05-2012, 02:00 PM   #21
 
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I don't think anyone loves hearing/reading about that kinda stuff more than I.

But I'm somewhat conflicted over whether I should find entertainment in the suffering of others.

It's not like I am a physician who is studying how to treat these peope; it's basically just a morbid curiosity to me. And I'm not sure that's OK.
I'd say most physicians started out with a "morbid" curiosity. They're just so curious that they decide to study it for a living.
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Old 06-05-2012, 02:00 PM   #22
 
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Totally fascinated. I will admit that I also am transfixed by the trainwreckiness/unfortunateness of it all, so I can't claim it's just pure science that motivates me. I also like the BBCA docs on people who fall in love with inanimate objects and the like.
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Old 06-05-2012, 02:09 PM   #23
 
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I find them horrifying! It looks like I am the only one. I see how it could be interesting in the name of science but these shows sometimes make me angry (and frightened!) that the doctors overlooked things early in the diagnosis.

The tumor episode would not interest me but I am sometimes interested in rare disorders that are finally diagnosed. I feel sorry for people who have something so rare that only like ten people in the world have been diagnosed so there's no funding for research.
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He has neurofibromatosis and doctors wouldn't touch it and now it's bigger.
NF is a difficult disease. There are 2 distinct families of NF, type 1 and type 2. I'm more fluent in type 2 because I have that particular disease. NF2 causes lesions on the CNS and PNS - many tumors can be excised easily if caught early, but as they grow and embed themselves around nerves and into other organs, removal can cause more neurological damage than leaving the tumor where it is. Until the last decade or so, there wasnt much in the way of medical intervention for NF. These lesions are slow growing, so theyre often not caught until they are rather substantial in size. I'm not sure if the man had type 1 or 2, but I'm assuming since the tumor was so incredibly large, that it had been growing for many, many years. When the doctors first saw the tumor, it may have been so intertwined on nerves and other organs, they possibly couldnt remove it.
Now that doctors and neurologists are more aware of NF (Nf is very rare and most doctors wont go near it), there are more areas of study and specialists who know how to manage the disease. A specialty team of doctors, routine full body MRIs, audiograms, etc. is an absolute must when treating this disease to ensure that cases like this are avoided.
Have you had any big tumors removed?
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Old 06-05-2012, 04:09 PM   #24
 
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I think there's a difference between pure "entertainment" and satisfying curiosity and learning about the world. If we didn't try to learn about stuff by observing things, we'd just make up our own baseless stories to explain the natural world...and that's getting into a whole nother topic.

Just because you're not studying the oddities as a physician doesn't mean you're not learning all kinds of things about the human body and the world when watching these kinds of shows.

Has anyone else been to the Mutter Museum in Philadelphia? It's amazing.
Whew, OK, I feel better now! LOL
LOL. It's like, YAY! I'm not a jerk! For me it's also about learning. I went to court reporting school because it was the fastest track to get me off welfare, but I really wanted to be a nurse. About 6 years ago I took all the prerequisites for nursing school and applied and got accepted. But that was the year the economy went south and I couldn't get student loans... they were just flat out refusing. And my credit was okay! So I watch all these medical shows and read all these medical books just for the heck of it.
I'd like to have been a dermatologist or a microbiologist, but I know I don't have the drive for med school, let alone the pre-med courses I'd need, not to mention the loan situation. And I honestly doubt I could function on the sleep schedule doctors are forced to keep during residency.

But my interest remains intact; watching programs like this is vicarious training, for me.
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Old 06-05-2012, 04:17 PM   #25
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I can't watch medical malady shows. Weak stomach. I feel bad saying this, but I think it's gross... Now if I had a friend or relative with a disfiguring condition, I would be desensitized, of course.
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Old 06-05-2012, 04:42 PM   #26
 
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He has neurofibromatosis and doctors wouldn't touch it and now it's bigger.
NF is a difficult disease. There are 2 distinct families of NF, type 1 and type 2. I'm more fluent in type 2 because I have that particular disease. NF2 causes lesions on the CNS and PNS - many tumors can be excised easily if caught early, but as they grow and embed themselves around nerves and into other organs, removal can cause more neurological damage than leaving the tumor where it is. Until the last decade or so, there wasnt much in the way of medical intervention for NF. These lesions are slow growing, so theyre often not caught until they are rather substantial in size. I'm not sure if the man had type 1 or 2, but I'm assuming since the tumor was so incredibly large, that it had been growing for many, many years. When the doctors first saw the tumor, it may have been so intertwined on nerves and other organs, they possibly couldnt remove it.
Now that doctors and neurologists are more aware of NF (Nf is very rare and most doctors wont go near it), there are more areas of study and specialists who know how to manage the disease. A specialty team of doctors, routine full body MRIs, audiograms, etc. is an absolute must when treating this disease to ensure that cases like this are avoided.
Have you had any big tumors removed?
Largest I had removed was 11 years ago when I was first diagnosed. It was a golf-ball sized tumor on my upper T-spine. I couldnt see it or feel it, but it showed on my first MRI scan. Less than a month later I was in surgery. They said that it has been growing so slowly that blood vessels and such had grown around it, and it wasnt causing an issue. However if I got in a car accident for example, it could have caused major complications. I see my neurologist all the time, I'm going tomorrow actually.
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Old 06-05-2012, 06:32 PM   #27
 
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We're rooting for you LuckyCharm. Hope all is well tomorrow.

I can't watch anything medical. I can't even watch movies where there's fake blood let alone anything real. I clench up if someone is given an injection. Tongue depressors are about my limit.
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Old 06-06-2012, 08:08 AM   #28
 
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Originally Posted by Lucky Charm View Post
NF is a difficult disease. There are 2 distinct families of NF, type 1 and type 2. I'm more fluent in type 2 because I have that particular disease. NF2 causes lesions on the CNS and PNS - many tumors can be excised easily if caught early, but as they grow and embed themselves around nerves and into other organs, removal can cause more neurological damage than leaving the tumor where it is. Until the last decade or so, there wasnt much in the way of medical intervention for NF. These lesions are slow growing, so theyre often not caught until they are rather substantial in size. I'm not sure if the man had type 1 or 2, but I'm assuming since the tumor was so incredibly large, that it had been growing for many, many years. When the doctors first saw the tumor, it may have been so intertwined on nerves and other organs, they possibly couldnt remove it.
Now that doctors and neurologists are more aware of NF (Nf is very rare and most doctors wont go near it), there are more areas of study and specialists who know how to manage the disease. A specialty team of doctors, routine full body MRIs, audiograms, etc. is an absolute must when treating this disease to ensure that cases like this are avoided.
Have you had any big tumors removed?
Largest I had removed was 11 years ago when I was first diagnosed. It was a golf-ball sized tumor on my upper T-spine. I couldnt see it or feel it, but it showed on my first MRI scan. Less than a month later I was in surgery. They said that it has been growing so slowly that blood vessels and such had grown around it, and it wasnt causing an issue. However if I got in a car accident for example, it could have caused major complications. I see my neurologist all the time, I'm going tomorrow actually.

I'm hoping it goes well, too...no more surgery!
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Old 06-06-2012, 08:53 AM   #29
 
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Originally Posted by Lucky Charm View Post
NF is a difficult disease. There are 2 distinct families of NF, type 1 and type 2. I'm more fluent in type 2 because I have that particular disease. NF2 causes lesions on the CNS and PNS - many tumors can be excised easily if caught early, but as they grow and embed themselves around nerves and into other organs, removal can cause more neurological damage than leaving the tumor where it is. Until the last decade or so, there wasnt much in the way of medical intervention for NF. These lesions are slow growing, so theyre often not caught until they are rather substantial in size. I'm not sure if the man had type 1 or 2, but I'm assuming since the tumor was so incredibly large, that it had been growing for many, many years. When the doctors first saw the tumor, it may have been so intertwined on nerves and other organs, they possibly couldnt remove it.
Now that doctors and neurologists are more aware of NF (Nf is very rare and most doctors wont go near it), there are more areas of study and specialists who know how to manage the disease. A specialty team of doctors, routine full body MRIs, audiograms, etc. is an absolute must when treating this disease to ensure that cases like this are avoided.
<snip>
Largest I had removed was 11 years ago when I was first diagnosed. It was a golf-ball sized tumor on my upper T-spine. I couldnt see it or feel it, but it showed on my first MRI scan. Less than a month later I was in surgery. They said that it has been growing so slowly that blood vessels and such had grown around it, and it wasnt causing an issue. However if I got in a car accident for example, it could have caused major complications. I see my neurologist all the time, I'm going tomorrow actually.
Wow. Thanks for that info. I'll pay special attention tonight and see what they say about this poor guy. And good luck at the doc's!
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Old 06-06-2012, 04:08 PM   #30
 
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Thanks ladies! Everything went fine! My Dr. said hes perfectly happy with how I'm doing, no concerns at all for the time being. I appreciate your kind words.
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