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Old 09-29-2009, 03:18 PM   #21
 
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i'm so hoping that it is something that can be cured with diet modifications and consistent use of probiotics.

how do they test for celiac disease?
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Old 09-29-2009, 03:24 PM   #22
 
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I found this link, but you might want to do more research, or maybe one of the curlies will have better info.

Keeping my fingers crossed that your appointment goes smoothly and it's nothing really serious.
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Old 09-29-2009, 03:33 PM   #23
 
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I found this link, but you might want to do more research, or maybe one of the curlies will have better info.

Keeping my fingers crossed that your appointment goes smoothly and it's nothing really serious.
thanks utopiastars! that actually was very helpful. i'm going to call my dr. and see if that is included in my testing friday. thanks girl!
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Old 09-29-2009, 03:35 PM   #24
 
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I found this link, but you might want to do more research, or maybe one of the curlies will have better info.

Keeping my fingers crossed that your appointment goes smoothly and it's nothing really serious.
I got those tests run along with a bunch of other tests. The only thing they found was that I had a vitamin D deficiency. I never did the stool tests since they didn't think it was bacterial or viral infection. My first GI doctor however did absolutely think I needed to have a colonscopy! (which I never got or needed)
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Old 09-29-2009, 05:15 PM   #25
 
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with celiac disease would things like rice or bread upset my stomach? they do not. i eat a lot of asian food which i love. i also drink beer without bloating or gastro distress. i've not been tested for celiac disease. what type of test is it (i.e. blood, etc)?
Symptoms of CD vary a lot from person to person, a lot of people don't even know they have it until it results in some kind of complication from going untreated. For me, I became lactose intolerant (which can be a symptom of CD) as well as having a lot of bloating and nausea after I ate. Some people have problems with their bowels, others just notice that they get sick with cold/flus all the time. Because the symptoms vary so much CD is really under diagnosed. Diagnosis usually comes when a patient initiates questions and asks for tests. Usually they start with a blood test, if the blood test shows anything they might want to do an endoscopy. I encourage everyone to get tested because its so common but so often misdiagnosed.
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Old 09-29-2009, 06:07 PM   #26
 
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I have Celiac and thats the exact symptom. I had NO symptoms before I was tested, my mom, aunt, uncle, and cousin have all been diagnosed. After I was diagnosed and cut wheat/gluton out of my diet I noticed a HUGE difference. Its like I couldnt tell that I had symptoms until I knew what feeling good felt like.

The first test was a simple blood draw, then they did a full endoscopy looking for inflamation in the small intestine (which is pretty much all Celiac is, the small intestine gets infected and stops obsorbing nutrients) I have more info if you want it.

Just to add a bit more, I was always lactose intolerant too, it VERY common to have both....
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Old 09-29-2009, 06:16 PM   #27
 
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Yep me too. A gluten free diet has made a huge difference for me, I rarely get sick and have much more energy than I used to.
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Old 09-29-2009, 08:14 PM   #28
 
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If there's colon cancer in your family history you may want to go for a colonoscopy. But it sounds like a dietary thing.
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Old 09-29-2009, 08:21 PM   #29
 
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thanks for all the info on cd!! do you all that have it just do a gluten free diet or do you also have to take medicine? did you notice any weight loss after you were diagnosed and made dietary changes? the reason i'm asking is again because for the amount that i exercise and the way that i eat, it seems like there's some extra "weight" bloating around my stomach that i want to shed that just seems stuck.

thanks sbb. my grandmother died of colon cancer but had a LONG history of digestive issues that she ignored. i mentioned it to my doctor but he didn't seem overly concerned. i'll mention it again though when we meet to discuss the results of the tests i'm having fri.

thanks again for everyone sharing their information and stories.
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Old 09-29-2009, 08:32 PM   #30
 
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my grandmother died of colon cancer but had a LONG history of digestive issues that she ignored
Not to guano too much, but could you please elaborate on what her GI issues were? TIA
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Old 09-29-2009, 08:54 PM   #31
 
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Originally Posted by luvmylocs View Post
thanks for all the info on cd!! do you all that have it just do a gluten free diet or do you also have to take medicine? did you notice any weight loss after you were diagnosed and made dietary changes? the reason i'm asking is again because for the amount that i exercise and the way that i eat, it seems like there's some extra "weight" bloating around my stomach that i want to shed that just seems stuck.

thanks sbb. my grandmother died of colon cancer but had a LONG history of digestive issues that she ignored. i mentioned it to my doctor but he didn't seem overly concerned. i'll mention it again though when we meet to discuss the results of the tests i'm having fri.

thanks again for everyone sharing their information and stories.
The usually don't recomment the colonscopy until 45-50, then then once ever 5-10 years (which I think is ridiculous), but with your history I would pursue it. It's a pricey procedure.
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Old 09-29-2009, 09:26 PM   #32
 
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my grandmother died of colon cancer but had a LONG history of digestive issues that she ignored
Not to guano too much, but could you please elaborate on what her GI issues were? TIA
well she was always complaining of "not being able to go"...i remember that even as a kid. that's not normal. you should go every day i think. at least once. some people disagree with this but if you're putting food in and nothing is being eliminated, where do you think it is? backed up in you system...a problem.

then i just found out from my mother that she had gall stones and they wanted to take her gall bladder out but there was some actor in the 70's who was having his removed and he died on the operating table. after that she refused to get hers removed but i think she also failed to make the dietary changes i'e been reading about that can really help gall bladder inflammation issues.

she didn't really drink water or eat a lot of fruit & veggies. i suspect her fiber intake was very low. from what i'm reading that seems VERY important for almost every digestive issue i've read about.

finally, she was supposed to get a colonoscopy but was scared. by the time she went in she hadn't had a bowel movement in a long time and she was in PAIN. she was completely backed up. she had to get a colectomy which was awful for her physically and emotionally. they had to go back in because there was excessive blockages. the cancer was BAD. she only lived 4 months after her diagnosis. the last month was very hard. she never got out of the hospital/hospice care after her diagnosis.

sbb, both of my parents have had colonoscopies. more than one each because of their age and they are fine so i'm a little less worried about colon cancer but want to see what the first round of testing shows. i think with my grandmother it makes me so sad because i think she is one of those situations they talk about when they say how preventable some cancers are. she didn't do a lot of prevention, she didn't watch her diet or drink enough water (by her own account), she didn't exercise or manage her stress well. she didn't get tests that were reommended. she also had very high blood pressure which lead to a stroke about 8 months before her cancer diagnosis. so there were a lot of things at play here that i wish we'd all paid more attention to and she might still be here.
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Old 09-29-2009, 09:55 PM   #33
 
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Originally Posted by luvmylocs View Post
thanks for all the info on cd!! do you all that have it just do a gluten free diet or do you also have to take medicine? did you notice any weight loss after you were diagnosed and made dietary changes? the reason i'm asking is again because for the amount that i exercise and the way that i eat, it seems like there's some extra "weight" bloating around my stomach that i want to shed that just seems stuck.
Nope, no medication just a VERY strict gluten free diet. Before going on the gluten free diet I was very very skinny but always had kind of a pot belly, I've gained weight everywhere except my tummy which is now flatter - and I'm now a much more normal size.
When I was first diagnosed I went on this site a lot to get info, you should check it out: http://www.celiac.com/gluten-free/
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Old 09-29-2009, 10:04 PM   #34
 
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Originally Posted by luvmylocs View Post
thanks for all the info on cd!! do you all that have it just do a gluten free diet or do you also have to take medicine? did you notice any weight loss after you were diagnosed and made dietary changes? the reason i'm asking is again because for the amount that i exercise and the way that i eat, it seems like there's some extra "weight" bloating around my stomach that i want to shed that just seems stuck.
Nope, no medication just a VERY strict gluten free diet. Before going on the gluten free diet I was very very skinny but always had kind of a pot belly, I've gained weight everywhere except my tummy which is now flatter - and I'm now a much more normal size.
When I was first diagnosed I went on this site a lot to get info, you should check it out: http://www.celiac.com/gluten-free/
thank you SO much! i can't wait to get some answers and make some changes and feel better, consistently!!
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Old 09-29-2009, 10:08 PM   #35
 
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given our talking of cancer i thought this was a good article on webmd and consistent with some of the things dr. oz mentioned...particularly that bloating and abdominal pain could be a sign of ovarian cancer...

15 cancer symptoms women ignore

btw, i'm not as scared that what's wrong is something major like cancer, i just think all the cancer stories around me and my symptoms had me nervous but i think i'm feeling a little less stressed after reading all y'alls comments...
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Old 09-30-2009, 03:08 AM   #36
 
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thanks for all the info on cd!! do you all that have it just do a gluten free diet or do you also have to take medicine? did you notice any weight loss after you were diagnosed and made dietary changes? the reason i'm asking is again because for the amount that i exercise and the way that i eat, it seems like there's some extra "weight" bloating around my stomach that i want to shed that just seems stuck.
Nope, no medication just a VERY strict gluten free diet. Before going on the gluten free diet I was very very skinny but always had kind of a pot belly, I've gained weight everywhere except my tummy which is now flatter - and I'm now a much more normal size.
When I was first diagnosed I went on this site a lot to get info, you should check it out: http://www.celiac.com/gluten-free/
thank you SO much! i can't wait to get some answers and make some changes and feel better, consistently!!
PS: whatever you do, don't go gluten free before having the tests. They test for signs of your body reacting to gluten...so if you haven't been eating gluten the tests will come back negative regardless if you have CD or not. Good luck with it all. Feel free to PM me if you have any questions.
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Old 09-30-2009, 06:15 AM   #37
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thanks for all the info on cd!! do you all that have it just do a gluten free diet or do you also have to take medicine? did you notice any weight loss after you were diagnosed and made dietary changes? the reason i'm asking is again because for the amount that i exercise and the way that i eat, it seems like there's some extra "weight" bloating around my stomach that i want to shed that just seems stuck.

thanks sbb. my grandmother died of colon cancer but had a LONG history of digestive issues that she ignored. i mentioned it to my doctor but he didn't seem overly concerned. i'll mention it again though when we meet to discuss the results of the tests i'm having fri.

thanks again for everyone sharing their information and stories.
The usually don't recomment the colonscopy until 45-50, then then once ever 5-10 years (which I think is ridiculous), but with your history I would pursue it. It's a pricey procedure.
Actually, I think it's totally worthwhile to have colonoscopies on that schedule. (Every 10 years for most people, every 5 if you have family history.) Colon cancer develops from polyps, which can be detected and removed during a colonoscopy. The cancer grows very slowly, so having colonoscopies guarantees you will never get colon cancer. (My mother died of colon cancer, and it was VERY ugly, so I am kind of a crusader on this topic!)
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Old 09-30-2009, 06:22 AM   #38
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Most folks don't want to go to the doc b/c they don't want to know. My mil, for example
S~ I hope you find out soon what the prob is... (((hugs)))
From my experience, it does sound like celiac, as well...
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Old 09-30-2009, 09:09 AM   #39
 
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PS: whatever you do, don't go gluten free before having the tests. They test for signs of your body reacting to gluten...so if you haven't been eating gluten the tests will come back negative regardless if you have CD or not. Good luck with it all. Feel free to PM me if you have any questions.
thanks so much. you've been very helpful. i feel silly but i didn't even really know what all foods do have gluten in them. i definitely won't be making any changes before i go on fri. i am thinking celiac testing isn't included but i can't tell from the lab work paper....it looks like cholesterol, etc. i'm trying to call my dr.'s nurse to see if it can be added to my fri testing.

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Most folks don't want to go to the doc b/c they don't want to know. My mil, for example
S~ I hope you find out soon what the prob is... (((hugs)))
From my experience, it does sound like celiac, as well...
true to the bolded!!

thanks wilee...
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Old 09-30-2009, 09:21 AM   #40
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Not a prob, S~
What does the labwork say exactly?
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