bloating & abdominal discomfort - UPDATE #2


thanks so much. you've been very helpful. i feel silly but i didn't even really know what all foods do have gluten in them
Originally Posted by luvmylocs
Unfortunately a lot of things, mainly things with flour - bread, pizza, cookies, etc. Fortunately though there are a lot of substitutes and places you can buy food with the substitues.

http://www.celiac.com/

This is a good website with a lot of gluten free info. I also had that bad stomach pooch. I don't have a gluten or lactose intolerance but I believe I have food allergies that flare up sometimes so I try to limit the intake if I can.
Not a prob, S~
What does the labwork say exactly?
Originally Posted by WileECoyote - Dissolving Bikini Wearer
it's a home. i'll look tonight. i thought it was the metabolic function or something but i'll post when i look tonight. thanks!!
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thanks so much. you've been very helpful. i feel silly but i didn't even really know what all foods do have gluten in them
Originally Posted by luvmylocs
Unfortunately a lot of things, mainly things with flour - bread, pizza, cookies, etc. Fortunately though there are a lot of substitutes and places you can buy food with the substitues.

http://www.celiac.com/

This is a good website with a lot of gluten free info. I also had that bad stomach pooch. I don't have a gluten or lactose intolerance but I believe I have food allergies that flare up sometimes so I try to limit the intake if I can.
Originally Posted by Josephine
hmm that might explain why sweets make me feel icky. i love cupcakes and cake type sweets.

i don't know if i'll get the celiac testing but i wonder is there any disadvantage to eating a gluten free diet (besides throwing off test results). i guess a better was to say it is eating gluten products healthy for some people?
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It's a bit trendy right now to be on a gluten-free diet even when you don't have celiac disease, but I haven't seen any evidence to show that it's beneficial.

It's not such an easy diet to maintain. The biggest problem is eating out -- at restaurants, even food that doesn't appear to contain any wheat products often has some sneaked in there.

(My assistant has celiac disease. She's very relieved to be able to deal with her symptoms, but misses bread products and eating out. Many of the baked goods that are gluten-free are also taste-free, she says.)
luvmylocs - I'm sending well wishes your way.

I am on a gluten free diet - have been since Dec 2008. My husband has many, many food allergies, gluten and casein are on the list as well as tomatoes, peas, garlic, corn, rice, almonds, peanuts,peppers, and on and on.

Because he's my squish, I decided not to let him go it alone, so I've been doing the diet too. It's become a way of life, we don't even think about it any more.

We actually eat at home more than eat out, so that saves us a lotof money. But eating out is not as tough as it used to be. PF Chang's, the Outback, and several other restaurants actually have gluten free meals, so it just takes a bit of investigating ahead of time.

What helped us was not looking at it as a temporary thing with some sort of time limit - it's just the way things are for us now.

I also don't eat sugar, if I need a sweetener I use agave, carob instead of chocolate, flax meal instead of eggs for recipes that call for eggs, etc. Our food menu is very lean, but when you have to, you get creative. Since we've started my hubby no longer has stomach issues, and I've lost 45 pounds - I now wear a size 6 - woot-woot!!

Under normal circumstances, I wouldn't suggest anyone try eating this way just because. But if you do have medical issues that require you to make this kind of change - it is doable, and now a days there are a lot more tasty products available.

Try a K-Toos cookie instead of an oreo the next time you're looking for a sweet treat.(Personally, I don't eat K-toos anymore because they have sugar in them - but when I did, I enjoyed them just as well as an oreo).
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luvmylocs - I'm sending well wishes your way.

I am on a gluten free diet - have been since Dec 2008. My husband has many, many food allergies, gluten and casein are on the list as well as tomatoes, peas, garlic, corn, rice, almonds, peanuts,peppers, and on and on.

Because he's my squish, I decided not to let him go it alone, so I've been doing the diet too. It's become a way of life, we don't even think about it any more.

We actually eat at home more than eat out, so that saves us a lotof money. But eating out is not as tough as it used to be. PF Chang's, the Outback, and several other restaurants actually have gluten free meals, so it just takes a bit of investigating ahead of time.

What helped us was not looking at it as a temporary thing with some sort of time limit - it's just the way things are for us now.

I also don't eat sugar, if I need a sweetener I use agave, carob instead of chocolate, flax meal instead of eggs for recipes that call for eggs, etc. Our food menu is very lean, but when you have to, you get creative. Since we've started my hubby no longer has stomach issues, and I've lost 45 pounds - I now wear a size 6 - woot-woot!!

Under normal circumstances, I wouldn't suggest anyone try eating this way just because. But if you do have medical issues that require you to make this kind of change - it is doable, and now a days there are a lot more tasty products available.

Try a K-Toos cookie instead of an oreo the next time you're looking for a sweet treat.(Personally, I don't eat K-toos anymore because they have sugar in them - but when I did, I enjoyed them just as well as an oreo).
Originally Posted by OnyxCabelo
what a great and encouraging post! after anything major is ruled out i might try to eat this way for health reasons. dr. office isn't calling back so i don't know if i'll get the celiac testing on fr.

i've been looking at that site. it seems rice is okay but is chocolate? i love my dark chocolate.
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Yeah, it's really not such a bad way to go once you get used to it.

Dark chocolate should be fine, but what you will find is that you will want to look very carefully at the ingredients on the wrapper as well as the labeling which might tell you that the product was created in a facility with other products that might contain gluten or other allergens - this becomes a cross-contamination issue. Peanuts for my husband are a real issue, so if the label says it was made in the same facility as peanuts, we always put it back on the shelf.

The great thing is that there are a lot of companies now that know people have these issues and can't afford to worry about cross contaminants so they make certain their facility are free of other allergens.

If you find that gluten is your issue, let us know - I have a list of products we purchase all the time that taste very good. After all these months of doing this - we've had lots of time to experiment.
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great! i think i'll want that list anyway.

so is gluten-free eating an all or nothing lifestyle or is eating that way even say 95% of the time still helpful in helping you feel better?

for example, i've never been tested for lactose intolerance but i KNOW i'm lactose intolerant. i avoid it most of the time but if i do have some i feel discomfort but it won't send me to the hospital or anything. is it the same sort of thing for gluten intolerance?
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great! i think i'll want that list anyway.

so is gluten-free eating an all or nothing lifestyle or is eating that way even say 95% of the time still helpful in helping you feel better?

for example, i've never been tested for lactose intolerance but i KNOW i'm lactose intolerant. i avoid it most of the time but if i do have some i feel discomfort but it won't send me to the hospital or anything. is it the same sort of thing for gluten intolerance?
Originally Posted by luvmylocs
I think it really depends on how severe your symptoms are. I'm no expert, but as I understand it many people on the diet could potentially cheat and the result might be some discomfort, but not life threatening. If on the other hand, what they eat causes an anaphylactic reaction, then yes, it's most definitely best to avoid it completely - no cheating.

My husband can eat a burger from MickyD's with only minor issues for the next couple days (i.e. mild bowel/stomach irritation). So, in that instance he weighs the cost - is having a Big Mac really worth the irritation? Some days it is worth it to him - some days not so much ( I try not to cheap at all, it's just easier for me not to go there in the first place).

If on the other hand he eats only a few peanuts, he's laid out for hours with bloating, diarrhea, cramps, etc. It takes a couple days to get him back on track. He never knew why this was until he was tested for food allergens and found he has an anaphylactic reaction to peanuts. So, no cheating with peanuts.


If you find that you do not have celiac disease and want to try the diet anyway, what you eat will be completely up to you. For myself, I know my limits and cravings - if I cheat - it's just sooo much easier to keep right on cheating. So if I don't cheat at all, I never get the taste for it - so it's easier for me to just walk away.
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Don't know if this applies to the OP or not, but my friend had your exact same symptoms and went through lots of testing without a diagnosis. Then she changed breakfast cereals and her symptoms went away. Turned out that her Kashi Go Lean Crunch cereal was giving her big-time abdominal bloating, discomfort and GI distress. Weird, huh? She wishes she had changed cereals before undergoing all the GI testing....
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onyxcabelo, thanks for that thorough explanation. i get it. i've looked up some books on amazon. i'm really interested in learning about this.

also, i don't know if i posted about this book before but it's a great reference especially since a lot of us have had or have digestive issues. healthy digestion the natural way it was in this book that i learned that removing the gall bladder isn't always the best way to deal with issues and that even if it is removed you can still have issues if you don't modify your diet.

Don't know if this applies to the OP or not, but my friend had your exact same symptoms and went through lots of testing without a diagnosis. Then she changed breakfast cereals and her symptoms went away. Turned out that her Kashi Go Lean Crunch cereal was giving her big-time abdominal bloating, discomfort and GI distress. Weird, huh? She wishes she had changed cereals before undergoing all the GI testing....
Originally Posted by 2poodles
interesting...i don't eat that cereal since i avoid breakfast with milk, even lactose free BUT i have eaten it in the past and let me tell you. if is full-o-fiber!!!
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Last edited by luvmylocs; 09-30-2009 at 03:05 PM.
thanks for all the info on cd!! do you all that have it just do a gluten free diet or do you also have to take medicine? did you notice any weight loss after you were diagnosed and made dietary changes? the reason i'm asking is again because for the amount that i exercise and the way that i eat, it seems like there's some extra "weight" bloating around my stomach that i want to shed that just seems stuck.

thanks sbb. my grandmother died of colon cancer but had a LONG history of digestive issues that she ignored. i mentioned it to my doctor but he didn't seem overly concerned. i'll mention it again though when we meet to discuss the results of the tests i'm having fri.

thanks again for everyone sharing their information and stories.
Originally Posted by luvmylocs
The usually don't recomment the colonscopy until 45-50, then then once ever 5-10 years (which I think is ridiculous), but with your history I would pursue it. It's a pricey procedure.
Originally Posted by Suburbanbushbabe
Actually, I think it's totally worthwhile to have colonoscopies on that schedule. (Every 10 years for most people, every 5 if you have family history.) Colon cancer develops from polyps, which can be detected and removed during a colonoscopy. The cancer grows very slowly, so having colonoscopies guarantees you will never get colon cancer. (My mother died of colon cancer, and it was VERY ugly, so I am kind of a crusader on this topic!)
Originally Posted by SuZenGuide

I'm totally in agreement - I think a diagnostic test once every 10 years is not frequent enough.
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great! i think i'll want that list anyway.

so is gluten-free eating an all or nothing lifestyle or is eating that way even say 95% of the time still helpful in helping you feel better?

for example, i've never been tested for lactose intolerance but i KNOW i'm lactose intolerant. i avoid it most of the time but if i do have some i feel discomfort but it won't send me to the hospital or anything. is it the same sort of thing for gluten intolerance?
Originally Posted by luvmylocs
I think it really depends on how severe your symptoms are. I'm no expert, but as I understand it many people on the diet could potentially cheat and the result might be some discomfort, but not life threatening. If on the other hand, what they eat causes an anaphylactic reaction, then yes, it's most definitely best to avoid it completely - no cheating.

My husband can eat a burger from MickyD's with only minor issues for the next couple days (i.e. mild bowel/stomach irritation). So, in that instance he weighs the cost - is having a Big Mac really worth the irritation? Some days it is worth it to him - some days not so much ( I try not to cheap at all, it's just easier for me not to go there in the first place).

If on the other hand he eats only a few peanuts, he's laid out for hours with bloating, diarrhea, cramps, etc. It takes a couple days to get him back on track. He never knew why this was until he was tested for food allergens and found he has an anaphylactic reaction to peanuts. So, no cheating with peanuts.


If you find that you do not have celiac disease and want to try the diet anyway, what you eat will be completely up to you. For myself, I know my limits and cravings - if I cheat - it's just sooo much easier to keep right on cheating. So if I don't cheat at all, I never get the taste for it - so it's easier for me to just walk away.
Originally Posted by OnyxCabelo
I don't mean to be snarky at all but if someone has celiac disease and they cheat with their diet they are opening yourself up to a lot a health complications. If you have CD and continue to eat gluten you are something like 70% more likely to get intestinal cancers, not to mention potential malabsorbtion etc.

Personally I am totally paranoid about my diet, I don't eat anything unless its fresh or specifically labeled as gluten free...its a pain but the health benefits are totally worth it for me.
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hmm that might explain why sweets make me feel icky. i love cupcakes and cake type sweets.

i don't know if i'll get the celiac testing but i wonder is there any disadvantage to eating a gluten free diet (besides throwing off test results). i guess a better was to say it is eating gluten products healthy for some people?
Originally Posted by luvmylocs
There is no real disadvantage, but gluten free substitutes can be lower in fiber than regular products so you'll need to make sure you eat enough fresh fruits and vegetables to balance it out.
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great! i think i'll want that list anyway.

so is gluten-free eating an all or nothing lifestyle or is eating that way even say 95% of the time still helpful in helping you feel better?

for example, i've never been tested for lactose intolerance but i KNOW i'm lactose intolerant. i avoid it most of the time but if i do have some i feel discomfort but it won't send me to the hospital or anything. is it the same sort of thing for gluten intolerance?
Originally Posted by luvmylocs
I think it really depends on how severe your symptoms are. I'm no expert, but as I understand it many people on the diet could potentially cheat and the result might be some discomfort, but not life threatening. If on the other hand, what they eat causes an anaphylactic reaction, then yes, it's most definitely best to avoid it completely - no cheating.

My husband can eat a burger from MickyD's with only minor issues for the next couple days (i.e. mild bowel/stomach irritation). So, in that instance he weighs the cost - is having a Big Mac really worth the irritation? Some days it is worth it to him - some days not so much ( I try not to cheap at all, it's just easier for me not to go there in the first place).

If on the other hand he eats only a few peanuts, he's laid out for hours with bloating, diarrhea, cramps, etc. It takes a couple days to get him back on track. He never knew why this was until he was tested for food allergens and found he has an anaphylactic reaction to peanuts. So, no cheating with peanuts.


If you find that you do not have celiac disease and want to try the diet anyway, what you eat will be completely up to you. For myself, I know my limits and cravings - if I cheat - it's just sooo much easier to keep right on cheating. So if I don't cheat at all, I never get the taste for it - so it's easier for me to just walk away.
Originally Posted by OnyxCabelo
I don't mean to be snarky at all but if someone has celiac disease and they cheat with their diet they are opening yourself up to a lot a health complications. If you have CD and continue to eat gluten you are something like 70% more likely to get intestinal cancers, not to mention potential malabsorbtion etc.

Personally I am totally paranoid about my diet, I don't eat anything unless its fresh or specifically labeled as gluten free...its a pain but the health benefits are totally worth it for me.
Originally Posted by mdrb



My response to the OP was based on her describing her eating things with lactose in it and it causing discomfort, but not sending her to the hospital. Her question was whether or not if she did decide to have something with gluten in it, would it send her to the hospital. My thoughts on that are as I described above.

But yeah, that's why I put in that little caveat..."I'm no expert". I don't have CD - neither does my husband. If the OP has it, which I truly hope she doesn't, I would assume she'd learn for herself and would have her doctors there to advice her on what is appropriate for her to eat rather than taking my anecdotal evidence as the gospel.


I know one person who claims to have CD, and she is the cashier at the grocery store I shop at. She's constantly asking me what new foods I'm trying and complaining about how she's struggling with cheating on her diet. That's her story - perhaps she's not as "paranoid" about it or perhaps she hasn't done the research.

70% is extremely high risk - if people do their research, I would assume that a percentage that high would be a definite motivator for staying on the straight and narrow.
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Sorry, I really didn't mean to be snarky, I just wanted to make sure that the OP understood that if she was diagnosed with CD then cheating with the diet has consequences. Doctors are a bit useless when it comes to CD, when I was diagnosed all they did was give me a little pamphlet with the basic information and sent me on my way...
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Sorry, I really didn't mean to be snarky, I just wanted to make sure that the OP understood that if she was diagnosed with CD then cheating with the diet has consequences. Doctors are a bit useless when it comes to CD, when I was diagnosed all they did was give me a little pamphlet with the basic information and sent me on my way...
Originally Posted by mdrb
No need to say sorry - I didn't take it in a bad way. Just like you I wanted to clarify that I'm not an expert and that I was referring to the hospital question.

I'm glad you mentioned the 70% stat - perhaps it will help someone better understand how a little pleasure today can grow sour on the stomach tomorrow.

My mom had the same issue when they diagnosed her with diabetes - gave her a pamphlet and nudged her out the door.
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thanks for all the good info. i'm waiting to find out if i can get tested for celiac. i read that it is also partly genetic. i wonder what % of black people have celiac. i know lactose intolerance is supposedly higher in blacks than whites. my friends always laugh when i warn them that "we are lactose intolerant as a people"

seriously, i think i understand. if a person has celiac, they should adhere to a strict diet to avoid complications. if they don't have celiac but chose to adhere to a gluten free diet they might feel healthier, lose weight, etc. if certian foods cause a bit of a discomfort but not a serious reaction a person should weigh the costs of the food they want and the amount of discomfort they might feel.
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Last edited by luvmylocs; 09-30-2009 at 10:55 PM.
you could just have a wheat/gluten intolerance...

i have this...eating wheat causes bloating, irritability, brain fog, itching and other ailments. when i totally avoid wheat, i feel a lot better...lighter.

avoid the wheat/gluten for about a month and see how you feel.
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What does the labwork say exactly?
Originally Posted by WileECoyote - Dissolving Bikini Wearer
hepatic function pnl (7)
cbc

i think if i can't get tested for celiac i will avoid it for a month as windflower suggested and see if my symptoms improve. i do know some days i feel way better than others but i don't consciously avoid wheat/gluten like i do dairy.
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