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Old 10-01-2009, 10:24 AM   #61
 
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i know lactose intolerance is supposedly higher in blacks than whites. my friends always laugh when i warn them that "we are lactose intolerant as a people"
When I was first dealing with this, I was surprised by just how many ethnic groups are affected. Lactose tolerance isn't really the norm — it's very mixed. And gets worse as people age.

Apparently it's a mutation that makes some people able to digest lactose their entire lives.

It's not typical for mammals to drink milk past the weaning stage in the animal world, so that we have such trouble isn't surprising.

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Old 10-01-2009, 10:37 AM   #62
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What does the labwork say exactly?
hepatic function pnl (7)
cbc

i think if i can't get tested for celiac i will avoid it for a month as windflower suggested and see if my symptoms improve. i do know some days i feel way better than others but i don't consciously avoid wheat/gluten like i do dairy.
Oh, ok...thanks...checkin' out the liver is good...
Let us know how things go!
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Old 10-01-2009, 11:01 AM   #63
 
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Good luck today, I hope you get some good news.
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Old 10-01-2009, 01:54 PM   #64
 
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the doctor called back....i am going to get tested for celiac/gluten intolerance.
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Old 10-04-2009, 12:43 AM   #65
 
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not a real update yet except to say i had bloodwork to test liver function, lipids and celiac. i had an abdominal ultrasound. i was trying to look to see if i saw anything. there were a couple of smallish white spots but that might be normal. i had no idea what i was looking for.

then i did that barium drink and they took pics of everything. then i had to let it flow through my system. they were shocked that it went to my colon by the 1st 20 min check. the doctor came in and did this kind of cool extra thing to "separate" my intestines and take pics. now that was interesting to see. nothing looked weird there or really stood out that i could see but again not really sure what i was looking for.

for the rest of the day i have several "movements". i'm sure the 1st couple were from the day before but the later ones had a glow in the dark hue (tmi)....i'm sure it was the barium moving through my system.

awaiting results....
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Old 10-04-2009, 02:28 AM   #66
 
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Yep that would be the barium...lol
I have my fingers crossed for you
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Old 10-04-2009, 05:47 AM   #67
 
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Hoping everything works out well for you and that the cause of your discomfort is found and fixed!
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Old 10-04-2009, 08:02 AM   #68
 
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Continued thoughts for you.
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Old 10-04-2009, 09:17 PM   #69
 
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Good luck. I've been having almost the exact same problems as you, and I'm going to see a doctor as soon as I find a new one (hopefully next week!)

I'm curious to see if I also have celiac. Sounds exactly like what I've been feeling lately.
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Old 10-06-2009, 02:43 PM   #70
 
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so the results of my abdominal ultrasound and upper gi test (barium drink) are both normal, yeah!!! apparently these tests would have revealed ibs and crohn's. i didn't think i had ibs (i don't have one of the most common symptoms). i never thought i had crohn's either but again, the test was looking for everything.

i do not have celiac, which from what i've been reading is very serious so i'm relieved. i would have to go through allergy testing to determine if i'm truly gluten sensitive. i may just try to eliminate gluten and see if i feel better because i'm starting to think strongly that might be it.

i was a little anemic. i don't usally have this problem due to my diet and i haven't been turned down for giving blood because of that in a long time so i'm not too worried about that.

he DID suggest that i get a colonoscopy which sort of surprised me based on my age. there was no urgency to do it but he wants to just rule out everything. i figure i'll go ahead and do it since i have insurance and since he's requesting it i won't have to pay for it, other than maybe a copay (the other tests i didn't have to pay a copay).

overall i actually feel a bit better. i've been religiously taking jarrow brand acidophilous and i also upped my fiber intake and i'm not experiencing the bloating. plus if it is gluten, perhaps i just ate too much and was having a reaction like i do if i have too much dairy. i haven't been eating as well as i should so that might explain part of it too. i still think stress is a possible factor.

so anyway, that's my update. i feel good that it seems to be nothing major but will feel much better after i get the colonoscopy done and get those results.
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Old 10-06-2009, 03:34 PM   #71
 
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Sorry to hear you don't have an actual name for your problems, but I'm glad it's not celiac, ibs, etc that could be more serious. Keep us posted.
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Old 10-06-2009, 03:36 PM   #72
 
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overall i actually feel a bit better. i've been religiously taking jarrow brand acidophilous and i also upped my fiber intake and i'm not experiencing the bloating. plus if it is gluten, perhaps i just ate too much and was having a reaction like i do if i have too much dairy. i haven't been eating as well as i should so that might explain part of it too. i still think stress is a possible factor.
These are good moves. I bet the gluten thing helps too. I'm glad you're are going forward with the colonoscopy. It really helps to rule out stuff.[/quote]
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Old 10-06-2009, 03:38 PM   #73
 
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Even if you had a negative blood test result you can still have Celiac, you need an endoscopy to check out the small intestine to get a result. I did the barium thing too but it was just to make sure my Celiac hadnt progressed to the dreaded cancer.

My mom tested negative for Celiac but we know she has it because she is the one with the strongest symptoms if some gluton sneaks into a meal.

I hope all gets figured out! I only bring this up because it took my mom 5 years before getting any answers for her tummy issues. Turns out she is allergic to dairy, corn, garlic, peanuts, spinach, and many many more, so the wheat was just the begining...
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Old 10-06-2009, 05:16 PM   #74
 
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so the results of my abdominal ultrasound and upper gi test (barium drink) are both normal, yeah!!! apparently these tests would have revealed ibs and crohn's. i didn't think i had ibs (i don't have one of the most common symptoms). i never thought i had crohn's either but again, the test was looking for everything.

i do not have celiac, which from what i've been reading is very serious so i'm relieved. i would have to go through allergy testing to determine if i'm truly gluten sensitive. i may just try to eliminate gluten and see if i feel better because i'm starting to think strongly that might be it.

i was a little anemic. i don't usally have this problem due to my diet and i haven't been turned down for giving blood because of that in a long time so i'm not too worried about that.

he DID suggest that i get a colonoscopy which sort of surprised me based on my age. there was no urgency to do it but he wants to just rule out everything. i figure i'll go ahead and do it since i have insurance and since he's requesting it i won't have to pay for it, other than maybe a copay (the other tests i didn't have to pay a copay).

overall i actually feel a bit better. i've been religiously taking jarrow brand acidophilous and i also upped my fiber intake and i'm not experiencing the bloating. plus if it is gluten, perhaps i just ate too much and was having a reaction like i do if i have too much dairy. i haven't been eating as well as i should so that might explain part of it too. i still think stress is a possible factor.

so anyway, that's my update. i feel good that it seems to be nothing major but will feel much better after i get the colonoscopy done and get those results.
I'm so glad it all went well and you're feeling better
I think somebody already mentioned that a colonoscopy is the only way to fully rule out celiac disease, but it sounds like your doctors are already looking into that. Let us know how it all goes. Good luck
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Old 10-06-2009, 07:40 PM   #75
 
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I think somebody already mentioned that a colonoscopy is the only way to fully rule out celiac disease, but it sounds like your doctors are already looking into that. Let us know how it all goes. Good luck
It actually needs to be an endoscopy. They go in through the mouth, and look at the small intestine, taking multiple biopsies for testing. A colonoscopy won't show celiac damage.

Whatever you do, do NOT stop eating gluten before you get your celiac panel or your endoscopy. I made a huge mistake with my little boy....I took him off of gluten before I knew that you need to be consuming gluten for the tests to be accurate. He now becomes so violently ill when he's contaminated that there is no way I can put him back ON gluten to get the definitive testing done.

I'm a member of this forum: www.glutenfree.com

It is a very friendly, helpful community, and I learn something new there almost every day. This thread in particular is tremendously helpful when you first go gluten free: http://forums.glutenfree.com/topic13...ht=boot%20camp

Once you've been doing it for a few weeks, it really does become second nature, and isn't nearly as limiting as you fear it might be. The only times we really have trouble is with family get togethers. Family is the hardest to educate, and seem to have the least patience for dietary restrictions. The most common reaction is "well, one BITE of cake won't hurt him." or "Just a little bit should be fine... " It's like saying "Just give him a little bit of cyanide. He'll be fine!"

Good luck!
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Old 10-06-2009, 08:29 PM   #76
 
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I think somebody already mentioned that a colonoscopy is the only way to fully rule out celiac disease, but it sounds like your doctors are already looking into that. Let us know how it all goes. Good luck
It actually needs to be an endoscopy. They go in through the mouth, and look at the small intestine, taking multiple biopsies for testing. A colonoscopy won't show celiac damage.

Whatever you do, do NOT stop eating gluten before you get your celiac panel or your endoscopy. I made a huge mistake with my little boy....I took him off of gluten before I knew that you need to be consuming gluten for the tests to be accurate. He now becomes so violently ill when he's contaminated that there is no way I can put him back ON gluten to get the definitive testing done.

I'm a member of this forum: www.glutenfree.com

It is a very friendly, helpful community, and I learn something new there almost every day. This thread in particular is tremendously helpful when you first go gluten free: http://forums.glutenfree.com/topic13...ht=boot%20camp

Once you've been doing it for a few weeks, it really does become second nature, and isn't nearly as limiting as you fear it might be. The only times we really have trouble is with family get togethers. Family is the hardest to educate, and seem to have the least patience for dietary restrictions. The most common reaction is "well, one BITE of cake won't hurt him." or "Just a little bit should be fine... " It's like saying "Just give him a little bit of cyanide. He'll be fine!"

Good luck!
Ooooooooooopps! Thats what I meant! Yes, they need to do an endoscopy.

I had a similar experience to your little boy, I went GF for about 6 months before I asked about testing. I had to go back onto gluten for 4 weeks before they could do the endoscopy and it was honestly the worse month of my life. I was so ill, I did nothing but sleep and poop for the entire time.
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Old 10-06-2009, 08:41 PM   #77
 
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so the results of my abdominal ultrasound and upper gi test (barium drink) are both normal, yeah!!! apparently these tests would have revealed ibs and crohn's. i didn't think i had ibs (i don't have one of the most common symptoms). i never thought i had crohn's either but again, the test was looking for everything.

i do not have celiac, which from what i've been reading is very serious so i'm relieved. i would have to go through allergy testing to determine if i'm truly gluten sensitive. i may just try to eliminate gluten and see if i feel better because i'm starting to think strongly that might be it.

i was a little anemic. i don't usally have this problem due to my diet and i haven't been turned down for giving blood because of that in a long time so i'm not too worried about that.

he DID suggest that i get a colonoscopy which sort of surprised me based on my age. there was no urgency to do it but he wants to just rule out everything. i figure i'll go ahead and do it since i have insurance and since he's requesting it i won't have to pay for it, other than maybe a copay (the other tests i didn't have to pay a copay).

overall i actually feel a bit better. i've been religiously taking jarrow brand acidophilous and i also upped my fiber intake and i'm not experiencing the bloating. plus if it is gluten, perhaps i just ate too much and was having a reaction like i do if i have too much dairy. i haven't been eating as well as i should so that might explain part of it too. i still think stress is a possible factor.

so anyway, that's my update. i feel good that it seems to be nothing major but will feel much better after i get the colonoscopy done and get those results.
I'm glad to hear that some of the major issues you were concerned about have been rules out, though I know it must be frustrating not to have a complete understanding of why you are having the symptoms you're having. It sounds like you have good doctor though, one who is willing to look into everything rather than let something slip by under the radar.

If you do decide to cut out gluten, keep us posted on how you're feeling.

.
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Old 10-06-2009, 10:59 PM   #78
 
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thanks for all the great feedback ladies. i'm thinking my test results for celiac are probably accurate and it might not be that because i don't think i've had malabsorption or the extreme pain that some people report as a result of gluten, however i am going to try gluten free because i'm curious to see if i am in fact sensitive to it like i am lactose.

i'll checkout the forums. i bought this book and i'm reading up on what it means. the big thing i learned is you CAN be gluten-sensitive and not have celiac and see really dramatic results by going gluten free.

i need to do a better job of stress management too.

thanks again ladies. i'll report back after the colonoscopy but that's not until the end of the month. until then i'm going to keep adhering to my healthy changes and hope to keep feeling good.
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Old 10-06-2009, 11:55 PM   #79
 
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you may also want to check out this book...great recipes.
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Old 10-06-2009, 11:55 PM   #80
 
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you could just have a wheat/gluten intolerance...

i have this...eating wheat causes bloating, irritability, brain fog, itching and other ailments. when i totally avoid wheat, i feel a lot better...lighter.

avoid the wheat/gluten for about a month and see how you feel.
This is me too. And, in fact the medical establishment now recognizes that there is a grey area between celiacs and those intolerant of gluten who don't necessarily have the celiac disease.

My own personal, anecdotal take is that wheat has been so modified over the years that it has increasingly become intolerable. Again my own take.

One enormous boon to eating gluten-free is that it seems to have alleviated much of the pain I have during my otherwise heinous menstrual cycles and ovulation cycles.
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